This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Unmet Needs in Short Bowel Syndrome’ published in 2023. This episode features Marion Winkler, PhD, RD, and Swapna Kakani, MPH, focusing on quality of life in adult patients with short bowel syndrome. This podcast series aims to educate clinicians on the current state of evidence in the management of SBS, stimulate ideas and questions for future research, and provide information in patient-friendly language to better educate and improve the health of patients with SBS.

This podcast is supported by Ironwood.

QOL Resources:

HPN-PRQOL: hpn_proq_.pdf

The Gutsy Perspective: project news | the gutsy perspective

Oley Foundation: www.oley.org

Short Bowel Syndrome: Where to find support, information, and community

Let's Talk SBS Conversation Guide PDF

Let's Talk SBS Appointment Checklist PDF

QOL References:

Fu M, Shi M, Li M, He G. The experience and needs of living with home parenteral nutrition in adult patients: A meta-synthesis of qualitative studies. Journal of Clinical Nursing. 2024;33:4468-4483.

Winkler MF, Machan JT, Xue Z, Compher C. Home parenteral nutrition patient-reported outcome questionnaire: sensitive to quality of life differences among chronic and prolonged acute intestinal failure patients. J Parenter Enteral Nutr. 2021;45(7):1475-1483.

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February 2025