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This is a very different style episode than what you are used to here at The Special Needs Mom Podcast.   If you've ever listened to The Moth, you'll feel right at home.

This episode was recorded on-site at the Global Genes Conference in San Diego in September 2022.  Global Genes envisions a globally connected community equipped to eliminate the challenges of rare disease.

To create this episode, I provided the storytellers with a framework to support them in telling their stories and in minutes they crafted these powerful and vulnerable stories. 

In this episode, you will witness thirteen stories total from moms and dads like you, adults with rare disease, and even a researcher who develops drugs to treat rare diseases.

Sit back and enjoy, and notice how you don't feel alone as a parent to a child with disabilities and medical complexities after you listen to these stories.

Episodes Mentioned in this Show:
Who Am I Now with Rachel Alves Episode 88
Having Impermissible Thoughts About Your Special Needs Child Episode 76

Other Podcasts mentioned in this show:
Once Upon a Gene Podcast
Parents As Rare with Adam Young

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