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In this episode, we unravel the mysteries surrounding Twin Anemia Polycythemia Sequence (TAPS) alongside Stephanie Ernst, a dedicated twin mom whose journey propelled her to advocate for awareness and support for families affected by this rare condition.
Stephanie's personal narrative, fueled by her experience with identical twin daughters born with TAPS, serves as the driving force behind her mission to shed light on this often overlooked aspect of twin pregnancies. Stephanie underscores the vital role of researchers and advocates in amplifying awareness and understanding of TAPS. From founding the TAPS Support Facebook group to establishing a dedicated foundation for research funding, Stephanie's efforts have cultivated a supportive community where families can find solace, resources, and empowerment.
For more information:
https://www.tapssupport.com/
https://stephanieernst.nl/advocacy/
By Twiniversity4.5
9494 ratings
In this episode, we unravel the mysteries surrounding Twin Anemia Polycythemia Sequence (TAPS) alongside Stephanie Ernst, a dedicated twin mom whose journey propelled her to advocate for awareness and support for families affected by this rare condition.
Stephanie's personal narrative, fueled by her experience with identical twin daughters born with TAPS, serves as the driving force behind her mission to shed light on this often overlooked aspect of twin pregnancies. Stephanie underscores the vital role of researchers and advocates in amplifying awareness and understanding of TAPS. From founding the TAPS Support Facebook group to establishing a dedicated foundation for research funding, Stephanie's efforts have cultivated a supportive community where families can find solace, resources, and empowerment.
For more information:
https://www.tapssupport.com/
https://stephanieernst.nl/advocacy/

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