If you’re a healthcare professional and interested in the idea of working for a patient organisation or just curious about what goes on behind the scenes, this is the episode for you! We’ll chat to our guest about their role as the Dietitian Advisor at The National Society for Phenylketonuria (NSPKU) and discuss their experiences and learnings over the years. PKU is a rare inherited disorder with diet being the main treatment - you may have heard it discussed one of our recent episodes with Louise Robertson and Sarah Howe – and the NSPKU is a patient organisation that exists to help and support people with PKU, their families and carers. We’re particularly excited to be chatting today about the NSPKU as its celebrating it’s 50th birthday this year!Suzanne Ford has been a dietitian in the NHS for over 25 years, and for 5 years she has been the Dietitian Advisor to NSPKU. Suzanne works in the NHS providing a service to adults with various metabolic disorders in Bristol. The NSPKU is developing reliable and trusted information about PKU for the community – please go to NSPKU website and follow on NSPKU twitter.Show Notes:Guest socials:Suzanne’s Twitter: @SuzanneFord19NSPKU website: https://nspku.org NSPKU Instagram: @nspkuNSPKU Twitter: @NSPKU