The LDN Radio Show About Low Dose Naltrexone

Judith, hailing from the United States, delved into the intricacies of navigating familial medical challenges associated with Ehlers-Danlos syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS). She candidly shared her personal journey of grappling with joint pain and instability stemming from EDS, while also shedding light on the diverse array of symptoms experienced by her children, including gastrointestinal issues, scoliosis, mast cell problems, and POTS. Of particular note were the severe manifestations experienced by Judith's middle child, encompassing convulsive syncope and migraines. Overcoming the hurdles of obtaining accurate diagnoses, Judith sought solace in the expertise of specialists, subsequently finding some respite through a combination of tailored medications and therapeutic interventions.

Dixie, shares her experiences living with multiple chronic conditions, including MCAS and EDS. She discusses her struggles with various symptoms, such as food sensitivities, skin rashes, environmental allergies, headaches, gut issues, and fatigue. Dixie also reflects on the challenges of getting accurate diagnoses and managing her complex symptoms. Overall, the interview provides valuable insights into the daily realities of living with overlapping chronic conditions and their impact on a person's life.

Today, I'd like to share the inspiring story of Shelby, a brave individual from the United States who has been dealing with multiple chronic illnesses for over a decade. Shelby's journey began 11 years ago when she started experiencing a mysterious illness that left her constantly sick and seeking answers from various medical professionals.

Her health struggles led to the diagnosis of chronic active Epstein-Barr virus, which subsequently triggered a cascade of autoimmune issues and multiple chronic illnesses. Despite facing numerous hospital visits and consultations with different doctors, finding effective treatment and receiving a proper understanding of her condition proved to be a challenging and frustrating experience for Shelby.

After years of uncertainty, Shelby was eventually diagnosed with mast cell activation syndrome (MCAS), a condition that was previously unknown to her and many healthcare providers she encountered. The lack of awareness and understanding of MCAS among medical professionals often left Shelby feeling isolated and misunderstood, with few options for appropriate care.

Shelby's perseverance led her to seek out specialized medical professionals, including a functional medicine doctor and a gastroenterologist, who were instrumental in guiding her towards the right treatment. One of the key therapies that significantly improved Shelby's quality of life was low-dose naltrexone (LDN), which helped balance her immune system and manage the symptoms of MCAS and other autoimmune conditions.

Before finding the right treatment and healthcare support, Shelby's daily life was severely impacted by her illnesses. As a high school junior, she was forced to discontinue her education due to the debilitating symptoms that left her bedridden and unable to carry out simple daily activities. From experiencing severe pain, muscle weakness, and constant nausea to enduring hospitalizations and drastic weight loss, Shelby's journey was filled with immense physical and emotional challenges.

Despite the hardships she faced, Shelby's resilience and determination shone through as she sought to raise awareness about MCAS and other underrecognized chronic illnesses. By sharing her experiences and advocating for a greater understanding of these conditions, Shelby aims to create a more supportive and informed community for individuals struggling with similar health challenges.

Shelby's story reminds us of the importance of empathy, awareness, and access to comprehensive care for individuals navigating complex chronic illnesses. Her journey reflects the ongoing need for increased education and recognition of conditions like MCAS, offering hope to those who often feel unseen and unheard within the healthcare system.

In conclusion, Shelby's unwavering spirit and commitment to spreading awareness about multiple chronic illnesses exemplify the resilience and strength of individuals facing similar health battles. Her journey is a testament to the power of advocacy, community support, and the pursuit of specialized care in navigating the complexities of chronic health conditions.

For information on LDN, go to

https://linktr.ee/ldnrt

Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses

We have a list of LDN Q&As on our website

https://ldnresearchtrust.org/questions-and-answers

Visit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.

https://www.ldnresearchtrust.org

We have a very active FB Closed Group

https://www.facebook.com/groups/LDNRT/

An interview with Teresa, who has been dealing with multiple health issues,

including mold and hormone problems. Teresa's symptoms were severe, and she had

been struggling with them for over two years. When she was at her sickest,

Teresa had histamine intolerance, gut problems, and neuroinflammation. She also

experienced hot flushed red faces whenever she worked out, endometriosis-type

symptoms, diarrhea, increased heart rate, weakness, and jumbled thoughts. 

Teresa sought help from multiple doctors

but found no relief. She had to go to functional medicine and naturopathic

medicine to get the help she needed. The doctors prescribed her supplements,

herbs, and homeopathics, among other treatments, to improve her health.

However, it took her some time to feel better despite adopting a healthy

lifestyle and following protocols. She learned about how to eat properly, take

care of her mitochondria, and improve her nervous system and relaxation through

meditation. 

Teresa describes her typical day when she

was at her sickest, and it is a poignant story. She would wake up feeling either

nauseous or sweating and had to move her bowels frequently. Within two hours of

waking up, her heart rate would increase, and she would feel weak, forcing her

to sit down. Teresa had to work as an online therapist and tried to see clients

despite feeling unwell. She couldn't be around intense smells, go outside, or

eat without feeling sick or nauseous. Her life was limited, and she was

essentially homebound. 

It wasn't until Teresa started taking LDN

that things started to improve drastically. Her functional medicine doctor

prescribed her LDN, which was initially a source of hesitation for her.

However, as she saw her roommate getting better after taking LDN, Teresa

decided to give it a try. LDN is a promising treatment option that has been

used for various health conditions, including autoimmune diseases, chronic

pain, and cancer. It works by boosting the body's natural immune response,

reducing inflammation and pain. 

Teresa's LDN treatment was a turning point,

and she started to feel better. She felt less sensitive to smells and was able

to tolerate more foods. She started to gain weight, have more energy, and

exercise again. It took her a while to feel better completely, but LDN was the

key that unlocked her health. It is a testament to the power of functional

medicine and the importance of finding the right treatment for each person's

unique health condition.

In this interview, Linda has the pleasure of speaking with

Kelly, a guest from the United States who shares her journey of dealing with

MCAS and POTS. Kelly discusses how she first noticed that something was wrong

with her body when she was a child due to severe GI symptoms, which led to her

receiving her first colonoscopy at the age of ten. However, despite years of

experiencing worsening symptoms, Kelly did not receive a formal diagnosis until

2019. She describes her frustration and the challenges she faced while seeking

answers from various specialists, highlighting the systemic factors within the

healthcare system that make it difficult for patients like herself to receive

proper care. As a social worker and a patient herself, Kelly provides unique

insights into how care for undiagnosed patients could be improved, emphasizing

the importance of physicians believing and trusting their patients, providing

them with resources, and access to care to help them find accurate diagnoses.

Kelly also discusses the complexity of MCAS, a multi-system disorder that can

affect various organs and the skin, making it difficult to recognize and

diagnose. She shares her experience of how finding a physician who understands

the condition was crucial to getting it under control. Overall, Kelly's story

sheds light on the challenges of living with an undiagnosed condition and the

importance of improving healthcare systems to support these patients.

Kelly is taking LDN, Low Dose Naltrexone.

Nicole, from the United States, speaks about the challenges she has faced due to several complex health conditions. Ehlers-Danlos syndrome (EDS) is a genetic condition affecting connective tissue, leading to hypermobility of joints and easy injury. Mast Cell Activation Syndrome (MCAS) is a condition in which mast cells, which are part of the immune system, are overactive and cause symptoms such as hives, swelling, and abdominal pain. Postural Orthostatic Tachycardia Syndrome (POTS) is a type of dysautonomia that affects blood circulation and can cause symptoms such as lightheadedness, fainting, and rapid heart rate upon standing. Endometriosis is a condition in which the tissue that normally lines the inside of the uterus grows outside of it, leading to pain and other symptoms. Finally, Lyme Disease is a bacterial infection transmitted by ticks that can cause a range of symptoms including fever, headache, and joint pain. Despite the difficulties she has faced, Nicole remains an inspiration to others who may be struggling with similar health challenges.

Kerriann, a person from Canada, shares her experience of living with multiple chronic illnesses. These conditions include Lyme disease, which is known to cause a range of symptoms from fatigue to joint pain, MCAS (Mast Cell Activation Syndrome), a rare condition that causes allergic-like reactions, EDS (Ehlers-Danlos Syndrome), a genetic disorder that affects connective tissues, POTS (Postural Orthostatic Tachycardia Syndrome), a condition that affects blood flow, and Fibromyalgia, a chronic pain disorder. Despite facing these challenges, Kerriann has chosen to share her story in the hope of raising awareness and providing support to others in similar situations.

Tracy, from the United States, shares her personal experience with various medical conditions. These conditions include MCAS (Mast Cell Activation Syndrome), a condition where the mast cells in the body are triggered to release chemicals causing symptoms such as itching, flushing, and swelling; POTS (Postural Orthostatic Tachycardia Syndrome), a condition where changes in position cause an abnormally high increase in heart rate; RA (Rheumatoid Arthritis), a chronic autoimmune disease that causes inflammation and pain in joints and can lead to joint damage; Fibromyalgia, a condition characterized by widespread pain, fatigue, and tenderness in muscles and joints; and finally, a potential diagnosis of EDS (Ehlers-Danlos Syndrome), a genetic disorder that affects the connective tissues in the body and can cause joint hypermobility, skin that is easily bruised or stretched, and other symptoms.

Kris has generously shared her personal journey with LDN, a medication used to treat a variety of conditions including autoimmune diseases, and MCAS, a condition where mast cells release excessive amounts of histamine and other chemicals, causing an array of symptoms such as hives, itching, and digestive problems. In her story, Kris discusses her experiences, including the challenges she faced and the treatments that worked for her. Her story may provide valuable insights and support to others who are also dealing with similar conditions.

Linda Elsegood engages in a conversation with Amy, who shares her journey with multiple health conditions, including small fiber neuropathy, mold toxicity, MCAS (mast cell activation syndrome), EDS (Ehlers-Danlos syndrome), and POTS (postural orthostatic tachycardia syndrome).

Amy recalls that she has been experiencing symptoms her whole life, such as hives, reactions to medication, and odd food reactions. She describes having weird physical quirks that were dismissed as "just an Amy thing." For instance, she would feel hot in her head after eating peanuts or feel dizzy. Despite undergoing allergy testing, her results were negative, and doctors attributed her symptoms to being "sensitive."

However, after contracting mono and strep in college, Amy's symptoms became more debilitating. She felt extremely tired all the time, and nothing seemed to help. She experienced GI (gastrointestinal) problems, brain fog, and heat intolerance. Her symptoms continued to worsen, and she had episodes every few months where she felt like she was dying. She would have trouble eating, and it felt like a brick was in her stomach.

Despite seeking help from countless doctors, none could diagnose her condition or connect all her symptoms. Her doctors would refer her to specialists, such as gastroenterologists, allergists, and pulmonologists, but it didn't help. They would attribute her symptoms to panic attacks, stress, or other unrelated conditions. They even removed her gallbladder, but it didn't alleviate her symptoms.

Amy recalls that her body kept reacting to everything, and she could only eat rice for a while. After two back-to-back pregnancies, her body could no longer tolerate certain foods. She experienced anaphylaxis, which she knew was not a panic attack, and her face swelled up, and her tongue became tingly. Her body began reacting to everything, and she now only eats six foods.

In conclusion, Amy's story highlights the challenges of living with multiple health conditions and the difficulties of finding a diagnosis and proper treatment. Her experiences could help others who may be going through the same struggles.

#LDN #Low Dose Naltrexone