Elise from the United States, shared her experiences with mast cell activation syndrome (MCAS), functional neurological disorder (FND), and various health issues. She described dealing with symptoms since childhood, such as severe fatigue, unpredictable energy levels, infections, severe allergic reactions, and bowel issues. Elise also mentioned the psychological impact of her conditions and how she coped with chemical sensitivities, such as avoiding strong smells and educating others about the impact of scented products. She expressed that recently her chemical sensitivity has been improving, and she shared specific memories of how certain perfumes triggered her health issues.

For information on LDN, go to

https://linktr.ee/ldnrt

Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses

We have a list of LDN Q&As on our website

https://ldnresearchtrust.org/questions-and-answers

Visit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.

https://www.ldnresearchtrust.org

We have a very active FB Closed Group

https://www.facebook.com/groups/LDNRT/

Josie from the United States shared her experience of using LDN for Crohn's disease, asthma, and rheumatoid arthritis. She began using LDN after struggling with Crohn's disease for several years and undergoing multiple surgeries, as traditional medications were not effective in the long term. After researching alternative treatments, she found a specific carbohydrate diet and LDN. Surprisingly, LDN not only alleviated her Crohn's symptoms but also reduced joint pain and respiratory distress from asthma. She started taking LDN in 2007 and initially experienced euphoria and deep sleep as side effects. Before using LDN, Josie suffered from gastrointestinal pain, cramping, diarrhea, fatigue, and frequent secondary infections. She adopted a specific carbohydrate diet, which involved eliminating sugars and starches, and found it to be effective in conjunction with LDN. Although she still experiences some Crohn's symptoms, they are largely under control with the modified diet and LDN. Josie can now eat a wider variety of foods, although she still needs to be cautious with certain grains and sugars.

For information on LDN, go to

https://linktr.ee/ldnrt

Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses

We have a list of LDN Q&As on our website

https://ldnresearchtrust.org/questions-and-answers

Visit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.

https://www.ldnresearchtrust.org

We have a very active FB Closed Group

https://www.facebook.com/groups/LDNRT/

I'd like to share the story of our guest, Mark from Australia, who will be talking to us about chronic pain and LDN. Mark's pain journey began about 10 years ago after a snowboarding accident which led to slipped discs. Over the past 2 and a half years, he has undergone multiple treatments including heavy medications and surgeries. However, about 6 months ago, he was introduced to LDN which has significantly improved his quality of life. Before LDN, Mark's pain levels were consistently high, impacting his daily activities and sleep. Now, thanks to LDN, his pain levels have decreased, and he's able to carry out everyday tasks without as much discomfort. LDN has truly been life-changing for Mark, allowing him to regain independence and mobility.

For information on LDN, go to

https://linktr.ee/ldnrt

Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses

We have a list of LDN Q&As on our website

https://ldnresearchtrust.org/questions-and-answers

Visit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.

https://www.ldnresearchtrust.org

We have a very active FB Closed Group

https://www.facebook.com/groups/LDNRT/

Dermot from Ireland started experiencing chronic fatigue syndrome symptoms after undergoing cancer treatment in 2018. His health declined significantly after a potential COVID-19 infection in early 2020, leading to ongoing health challenges such as nausea, fatigue, and difficulty breathing. Despite undergoing various tests and consultations, the exact cause of their symptoms remained unclear. After experiencing a brief improvement in 2022, they identified chronic fatigue mixed with irritable bowel syndrome as potential causes of their ongoing health issues and are exploring treatment options including LDN which has helpped enormously.

I'm Kerry from the US, I developed symptoms of lupus and fibromyalgia when I was 15. I struggled with fatigue and missed a lot of school. I was initially diagnosed with rheumatoid arthritis, but it was later changed to lupus. The treatments I received included gold salts, aspirin therapy, and eventually steroids. The steroids helped, but I experienced severe side effects, such as significant weight gain and swelling. I've been taking ibuprofen and Plaquenil, but they have their own risks and side effects. I also experienced leg pains that seemed unrelated to lupus, leading to a fibromyalgia diagnosis.

LDN id deffinately helping me.

Dr. Maria Torsiello, a pharmacist from Richmond, Virginia, was interviewed about her work at a compounding pharmacy.

She discusses her journey to becoming a pharmacist and her passion for science and helping people. Dr. Torsiello also provides insights into the compounding pharmacy where she works, describing the nonsterile compounding services they offer.

The conversation delves into the compounding of LDN (low-dose naltrexone) and its potential applications for various conditions, including in children and for sublingual administration. Additionally, there is mention of an upcoming conference where Dr. Torsiello's pharmacy could benefit from learning more about LDN and other pharmaceutical advancements.

In the future, the pharmacy aims to continue educating providers about LDN and its potential uses, particularly in cancer treatment.

Today, Cheryl from Australia, shares her story of LDN for long Covid that resulted in fibromyalgia and chronic fatigue syndrome.

I got COVID in August 2021, which resulted in a severe infection with double pneumonia and landed me in the hospital for a month. When I arrived home from the hospital a month later, that was exactly when long Covid began. However, back then, it was still relatively new, and nobody knew much about it. It is actually very common for long Covid to set in a month after having Covid. As you mentioned, I've since been diagnosed with chronic fatigue syndrome (CFS) and fibromyalgia, which are my worst symptoms.

Would you like me to go through the treatment options?

Yes, I would. I'd like to know when you were diagnosed, what treatment options you were given, and what has happened from then until now.

I had to seek help from a long Covid clinic because no treatment options were offered, as the doctors simply didn't know what to do with my symptoms. I experienced severe pain throughout my upper body and in all of my joints, which I rated at 9 to 10 out of 10. They put me on a high dose of Gabapentin (2400 milligrams) as a treatment option, which helped alleviate the pain, but also caused drowsiness and fatigue. I eventually started researching and found out about low-dose naltrexone (LDN), which my doctor was willing to prescribe. As I gradually increased the LDN dosage, I was able to decrease the Gabapentin slowly as well. Over the years, my pain has decreased from 9-10 out of 10 to 1-2 out of 10, which has significantly improved my quality of life.

I experienced a lot of drowsiness, which wasn't great since I was already dealing with fatigue. Those were my main side effects, although I also experienced extra fatigue. I always took it at night. I was on it for at least a year. When I was on Gabapentin, my pain levels were still at least 8 out of 10. They didn't reduce much, but they took the edge off the pain. The pain was very severe, and I had to take a high dose just to cope with it. It got me to a level where I could manage, but I couldn't do much. My fatigue was so bad that I could only go out once a week to shop for 18 months. The post-exertional malaise was so bad that for 48 hours after going out, I would sleep for 24 hours straight. I had to set an alarm to wake up and eat before going back to sleep.

I have been taking Low Dose Naltrexone (LDN) for the past 18 months, and it has significantly reduced my fatigue. It took some time, but now I can actually get up and function. Before taking LDN, I was practically nonfunctional. Taking it when I wake up works best for me, giving me a bit of energy to cope with the day. It wasn't just about the duration of taking LDN, but also finding the right dosage for me. It's been a combination of factors that has allowed me to really improve. Between 8 and 12 months, I didn't experience much improvement, and I could only shower once a week. However, now I can go out every day, and my post-exertional malaise is almost non-existent. I always advise people to see LDN as a long-term solution and not to expect instant results. It took a while for me, but it has definitely been worth it. Some people may notice amazing results in the first month, but for others, like me, it takes time and patience. It's not easy to be patient when you're not feeling well, but sticking with it is well worth it. LDN has also significantly reduced my severe shortness of breath and swallowing issues. I used to struggle to swallow medications, but that hasn't happened in quite a few months. My nighttime throat spasms have also reduced in severity and frequency. Despite being diagnosed with paralyzed vocal cords and vocal cord dysfunction, a combination of LDN and exercises taught by a speech pathologist has helped me greatly. Additionally, the headaches with concurrent eye pain have stopped, which I am thankful for. I've been lucky to have only experienced fairly mild brain fog compared to others with severe long Covid.

Cheryl hopes her story will give hope to others struggling with Long Covid.

Jenn from Canada shared her experience with mast cell activation syndrome (MCAS) and Ehlers-Danlos syndrome (EDS). She described experiencing symptoms of disautonomia and dislocations from a young age. Her health challenges worsened during her teen years with symptoms such as mold exposure, recurrent hospitalizations for mystery illnesses, and autoimmune-related issues. It wasn't until two years ago that she was diagnosed with MCAS after discovering hidden mold in her home. After consulting with an allergist and starting on a personalized treatment cocktail, including low-dose naltrexone (LDN), she noticed improvements in her chronic headaches, sleep, and other symptoms. The LDN helped alleviate her symptoms more than she expected and significantly improved her quality of life.

Sunita from the United States who takes LDN for fibromyalgia depression dry eye and dry mouth, her journey start end of 2013 living in a house with mold. She has Thyroid issues, Sjogrn's syndrome and LDN changed her life.

Dani from the US has undergone a gruelling and arduous health journey. Recently, she uncovered a tumor on her liver, prompting a series of tests that ultimately led to the diagnosis of mast cell activation syndrome (MCAS). Throughout her life, she has grappled with issues such as dislocating limbs, vertigo, gut problems, erratic sleep, rashes, and mental health challenges. By eliminating gluten and dairy from her diet, she has found some relief. It's evident that she has endured a great deal and has consulted numerous specialists before finally receiving her diagnosis.