Bendy Bodies with Dr. Linda Bluestein

61. Getting Back Up Again with Keeya Steel


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Life with multiple chronic illnesses is physically and mentally challenging. Feelings of exhaustion and emotional fatigue crowd in with physical symptoms and can be overwhelming in your daily life.

How do you find balance? How do you find a way forward and regain joy in your life?

We posed these questions to Keeya Steel, founder of the popular Hells Bells and Mast Cells on social media. As someone who lives with POTS (postural orthostatic tachycardia syndrome), MCAS (mast cell activation syndrome), and hEDS (hypermobile Ehlers-Danlos Syndrome), she is all too experienced at trying to find that balance.

Keeya shares her journey through a childhood peppered with “you’re making this up” accusations, as well as her diagnoses as an adult that brought relief and despair in equal measures.

Keeya speaks openly about how humor helped her find her way forward through some dark days, and her decision to share that humor with the world. She shares her emotional journey to accepting her chronic illnesses and disabilities.

Keeya also explains the online course she created with Dr. Linda Bluestein on optimizing medical appointments with complex illness, and why she wanted to share that course with others. Keeya reveals tips on getting the most out of doctor’s appointments and discusses her experiences with finding new medical professionals.

“In the end,” Keeya says, “I want people to be more open to hope and future joy.”

An inspiring episode for us all so don’t miss it!

More information about Keeya can be found on her website.  

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#Hope #Resilience #Disabled #ChronicIllness #DespiteTheOdds #PotsSyndrome #MastCells #EhlersDanlos #hEDS #Advocacy #ChronicIllnessCommunity #MedicalProfessionals #MedicalGaslighting #ChronicIllnessSupport #Accessibility --- Send in a voice message: https://podcasters.spotify.com/pod/show/bendy-bodies/message

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Bendy Bodies with Dr. Linda BluesteinBy Dr. Linda Bluestein

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