In this week’s episode, we sit down with Brent and Suzette to share the story of their daughter Chloe and her journey with a rare mitochondrial disorder. What began as a typical pregnancy quickly shifted into a complex medical journey marked by uncertainty, advocacy, and deep resilience.
Brent and Suzette vulnerably reflect on receiving Chloe’s diagnosis of Leigh Syndrome, navigating hospitalizations and developmental changes, and learning how to care for and advocate for their daughter while holding both grief and joy at the same time. Now 17 years into their journey, they offer powerful wisdom on partnership, perseverance, and choosing hope in the face of the unknown.
You’ll also hear how Chloe’s life and children like her, continue to inspire a greater mission through Morgan’s–creating inclusive spaces where individuals of all abilities are seen, valued, and celebrated.
As you listen, we hope you feel seen, supported, and reminded that even in the hardest moments, you are not alone!
The Mission of Morgan’s: To improve the quality of life for individuals of all ages and all abilities through initiatives that produce fully-inclusive, Ultra-Accessible™ experiences.
To get connected with Morgan’s:
Website | Instagram | Facebook
About Brent: Brent is the Chief Executive Officer of Morgan’s, a family of ultra-accessible, fully inclusive spaces designed with individuals with disabilities in mind and built for everyone to enjoy. With over 30 years of executive leadership experience across education, healthcare, research, and social services, Brent brings both strategic vision and heart to his work. Under his leadership, Morgan’s has grown to include a theme park, sports complex, camp, multi-assistance center, and inclusion institute, impacting communities on a local, national, and global level.
To get connected with DNM:
Website | Private Facebook Group | Instagram
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