End-of-Life University

Ep. 501 Disability-Informed End-of-Life Care with Carrie Batt


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Learn why it’s important to be aware of the needs of people with disabilities (and their families) when providing end-of-life and bereavement care.

My guest Carrie Batt is an end-of-life doula and the founder of SEOL Care which offers disability-competent end-of-life care, support and planning for people with a disability and their families. She advocates for disability competent care and grief support after losing a loved one with a disability . She created a Facebook group To Walk a Mile in My Shoes that honors loss and disability. Learn more at her website:

seolcare.ca

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This episode includes:
  • How Carrie ended up working in the deathcare community as a disability advocate
  • Definition and categories of disability
  • Why is there so little awareness of the needs of the disability community
  • How end-of-life planning may differ for the disability community
  • What disability awareness training for deathcare workers should consist of
  • Obstacles to improving disability education
  • Providing bereavement support to caregivers for those with a disability
  • End-of-life resources for the disability community
  • Links mentioned in this episode:
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    • Conversations on Death with ChatGPT – Audiobook herePrint Book here
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    • If you enjoy this content please share it with others and consider leaving a review on iTunes. Thanks again to all supporters on my page at Patreon.com/eolu, especially my newest patrons DawnRosie Ross, and Beverly. And thank you to Xu Ying Steiner for buying me 5 coffees and to Nancy Reese Jones who made a donation on Paypal! Your contributions make all the difference and ensure this podcast stays ad-free.

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      End-of-Life UniversityBy Karen Wyatt MD

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