Sleep Apnea Stories

Emma is joined by Dr. Clare Simon, a dentist offering mandibular advancement devices to patients in the UK.

In this episode:

* Clare shares how she discovered dental sleep medicine after around 10 years of general dentistry.

* Clare's husband's snoring and how he became her first patient.

* Why Clare decided to leave general dentistry to set up The London Dental Sleep Clinic.

* How patients access mandibular advancement devices in the UK via the NHS and paying privately.

* Clare explains how she uses home sleep tests for her patients.

* Increasing awareness around sleep health and sleep apnea.

Episode Sponsor

This episode is sponsored by Aeroflow Sleep - learn more here: ⁠⁠https://www.aeroflowsleep.com⁠⁠

Connect with Dr. Clare Simon

https://www.londondentalsleepclinic.com/

https://www.instagram.com/drclaresimon/

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Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey

Click here: ⁠⁠⁠⁠⁠⁠https://a.co/d/1KUzY0O⁠⁠⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country.

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Suicide prevention resources:

https://988lifeline.org/

Emma is joined by Nathan Pounds who shares his journey as a parent advocating for his child to get a diagnosis with obstructive sleep apnea.

In this episode:

* Nathan explains how he and his wife have four children who are 9, 8, 4 and 1.

* Breathing issues showing up in their eldest child as a baby and having him diagnosed as having "failure to thrive".

* As their son becomes a toddler, he shows ADHD and sensory issues.

* Visiting the pediatrician and being refused a referral for a sleep study because their child did not snore despite frequent nighttime wakenings and ADHD-like symptoms.

* Nathan talks about advocating for his child to get a referral for a sleep study.

* Getting a diagnosis of obstructive sleep apnea and referral to an ENT.

* Proceeding with surgery to remove adenoids and tonsils.

* Referal to a pediatric pulmonologist who could only address one concern out of OSA and asthma because of insurance billing and coding.

* Having a negative experience with a pediatric pulmonologist who advised Nathan that removing tonsils and adenoids was the ONLY treatment option for pediatric OSA.

* Completing a follow-up sleep study 3 months after the surgery and discovering Nathan's child's OSA had worsened to severe.

* Starting on CPAP and seeing massive improvements in sleep quality and growth in their child.

Episode Sponsor

This episode is sponsored by Aeroflow Sleep - learn more here: ⁠⁠https://www.aeroflowsleep.com⁠⁠

Connect with Emma:⁠⁠⁠

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Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey

Click here: ⁠⁠⁠⁠⁠⁠https://a.co/d/1KUzY0O⁠⁠⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country.

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma Cooksey is joined by Dr. Anne Marie Morse and Matthew Allard, the hosts of "Sleep Around The Podcast".

* Dr. Morse explains how her mother's experience living with multiple sclerosis encouraged her to pursue a career in medicine and specifically neurology.

* Matthew shares his experience of supporting his wife and child through their journeys to diagnosis with obstructive sleep apnea.

* Matthew shares his background working in CPAP therapy and then transitioning to working with Somnomed building relationships between sleep physicians and dentists specializing in dental sleep medicine.

* Anne explains how doctors are often not exposed to oral appliances as a treatment option for patients with obstructive sleep apnea.

* Matthew on how he met Anne at SLEEP 2022 and was blown away by her presentation.

* Deciding to co-host "Sleeping Around The Podcast" together.

* Anne explains how she learned more about oral appliances and is getting opportunities to speak at dental sleep medicine conferences.

* Issues patients with obstructive sleep apnea are facing when trying to access oral appliance therapy. Emma shares her experience as a patient, Matthew explains what happens when the relationships between doctors and dentists work well and Anne explains medical insurance reimbursement issues patients and doctors face.

* Dr. Morse shares her take on CPAP compliance and the infuriating situation patient and social media personality Tre Burge found himself in when his CPAP was taken away.

* Anne mentions Amy Sawyer's work on CPAP adherence and programs like MonitAir to improve the patient experience with CPAP.

* Teaming up with Neurology Live on the podcast.

* Anne explains her recently launched Sleep Wake Advisor Institute - https://www.mycme.com/pages/sleep-wake-advisor-institute-free-cme

Episode Sponsor

This episode is sponsored by Aeroflow Sleep - learn more here: ⁠⁠https://www.aeroflowsleep.com⁠⁠

Connect with Dr. Anne Marie Morse:

Connect with Matthew Allard:

https://somnomed.com/en/

Sleeping Around The Podcast

Website: https://www.sleepingaroundthepodcast.com/

YouTube: https://www.youtube.com/@SleepingAroundThePodcast?sub_confirmation=1

IG: https://www.instagram.com/sleepingaroundthepodcast

LinkedIn: https://www.linkedin.com/in/sleeping-around-11a4bb293/

TikTok: https://www.tiktok.com/@sleepingaroundthepodcast

Audio Pod: https://podcasts.apple.com/us/podcast/sleeping-around-the-podcast/id1589079877

FB: https://www.facebook.com/sleepingaroundthepodcast

Connect with Emma:⁠⁠⁠

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https://www.sleepapneastories.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Tre Burge - Educator and Designer - https://www.instagram.com/hefallsasleepshop/

Rachel Nesmith - Artist and Musician - https://www.instagram.com/thenapcave/

Amy Sawyer is the researcher Dr. Morse referred to on CPAP adherence. https://pubmed.ncbi.nlm.nih.gov/21652236/

Project Sleep's Helpline: https://project-sleep.com/helpline/

Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey

Click here: ⁠⁠⁠⁠⁠⁠https://a.co/d/1KUzY0O⁠⁠⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country.

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Bijo Sebastian, a father of three who lives between India and France.

In this episode:

* Bijo explains how he fell asleep at the wheel with his wife and 3 kids in the car.

* A polysomnogram shows severe sleep apnea with an AHI in the 50s.

* Starting CPAP therapy and Bijo's kids naming the machine and reminding him to pack it every time he traveled.

* Bijo explains how his mental health was impacted by his poor sleep and affected his relationship with his wife.

* Leaving his marriage and moving back to India to get help with the help of a cousin.

* Bijo describes taking an additional sleep study showing no improvement in his sleep apnea and another diagnosis of restless legs syndrome.

* How working with different specialists helped Bijo to improve his mental health and his sleep.

* The septoplasty that enabled Bijo to breathe properly through his nose for the first time.

Episode Sponsor

This episode is sponsored by Aeroflow Sleep - learn more here: ⁠https://www.aeroflowsleep.com⁠

Bijo's Links to Providers in India:

Link for iMagic Dental where Bijo discovered the CTBT scan :

https://youtube.com/@imagic8532?si=8uaYMl88DJqAUtzO

Dr Shankar the TMJ specialist

https://pulmedcmc.com/ 

The pulmonologist Bijo mentioned in Tamilnadu state of India

Connect with Emma:

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⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Project Sleep's Rising Voices Program:

https://project-sleep.com/rising-voices/

Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

Click here: ⁠⁠⁠⁠⁠https://a.co/d/1KUzY0O⁠⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country.

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Mollie Eastman, sleep coach and host of the "Sleep is a Skill" podcast.

In this episode:

* Mollie shares her own rock-bottom moment with her sleep problems and how she set out to fix her own sleep habits.

* Tracking sleep using wearables and creating "Sleep is a Skill".

* The importance of the circadian rhythm and how light can disrupt this natural cycle.

* Top tips on improving sleep including morning sunlight, avoiding bright light in the evening, getting enough steps in, and avoiding eating too close to bedtime.

Episode Sponsor

This episode is sponsored by Aeroflow Sleep - learn more here: https://www.aeroflowsleep.com

Connect with Mollie Eastman:

https://www.sleepisaskill.com/

https://www.instagram.com/mollie.eastman/

Connect with Emma:

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Watch conversations on YouTube:

⁠⁠https://www.youtube.com/@sleepapneastories⁠⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

Click here: ⁠⁠⁠⁠https://a.co/d/1KUzY0O⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country.

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Dr. Pam Sheets, a retired doctor who embarked upon a palate expansion called the 'EASE' procedure with Dr. Kasey Li. Pam was able to completely cure her sleep apnea following her procedure.

In this episode:

* Pam noticed that she was very tired a lot of the time and had nasal congestion.

* Stereotypes playing into Pam's thinking that she could not possibly have sleep apnea as a petite otherwise healthy woman.

* Orthodontic extractions and retractive braces and headgear Pam wore 24/7 for over a year as a teen.

* Pam describes reading James Nestor's book "Breath" and "Jaws" by Sandra Kahn on the link between jaw development and sleep-disordered breathing.

* Seeing an airway dentist and an orthodontist who specialized in airway issues.

* Pam describes having a sleep study showing she had sleep apnea and consulting doctors using telemedicine.

* Pam describes how her orthodontist recommended a surgical solution with an oral and maxillofacial surgeon.

* Starting CPAP treatment in the meantime while considering surgical options.

* Reasons Pam chose the EASE procedure with Dr. Kasey Li.

* Pam explains the EASE protocol in detail.

Dr. Kasey Li's website

Pam's surgeon discussed in this episode:

https://drkaseyli.org/ease/

Pam's orthodontist: Dr. Rebecca Bockow

https://www.inspiredortho.com

https://www.instagram.com/inspiredortho

Connect with Emma:

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Watch conversations on YouTube:

⁠https://www.youtube.com/@sleepapneastories⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

To learn more about upcoming Project Sleep events, visit: ⁠https://project-sleep.com/⁠

Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

Click here: ⁠⁠⁠https://a.co/d/1KUzY0O⁠⁠⁠ in the US or search your Amazon store for the title in your country.

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Dr. Steven Park, author of "Sleep, Interrupted" and host of the 'Breathe Better, Sleep Better, Live Better' podcast.

In this episode:

* Dr. Park's personal experience with sleep-disordered breathing and how that informed his work.

* How improving nasal patency through nasal surgery can improve CPAP use.

* Dr. Park explains why he recommends people to stop eating in the 3 hours before bedtime.

* Mouth-taping and how it can help people with sleep apnea.

* Upper Airway Resistance Syndrome and the patients who don't meet the criteria for sleep apnea but have significant symptoms.

* The problems with the current healthcare system especially for pregnant women.

* The low number of patients who are still using CPAP after a year.

* Dr. Park shares about the book he is currently working on.

Connect with Dr. Park:

https://doctorstevenpark.com/

https://www.youtube.com/@doctorstevenpark

Connect with Emma:

⁠⁠⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Watch conversations on YouTube:

https://www.youtube.com/@sleepapneastories

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

To learn more about upcoming Project Sleep events, visit: https://project-sleep.com/

Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

Click here: ⁠⁠https://a.co/d/1KUzY0O⁠⁠ in the US or search your Amazon store for the title in your country.

Survey for Patients Affected by the Philips CPAP Recall:

⁠https://survey.ucalgary.ca/jfe/form/SV_5aQkIgvUSP0SHBk?Q_CHL=qr⁠

ResMed Product Research Panel

ResMed is currently looking to recruit patients diagnosed with Obesity Hypoventilation, COPD, Neuromuscular Diseases and who are being treated with NIV (regardless of the brand). Click this link to participate:

⁠⁠https://resmed1.qualtrics.com/jfe/form/SV_3WSCJHxVKWu6sPc?Referer=Outreach1⁠⁠

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Tom Wilson, the leader of a Facebook support group for patients affected by the Philips CPAP recall.

In this episode:

* Tom explains his journey to diagnosis with obstructive sleep apnea and how he came to hear about the Philips CPAP recall.

* Tom shares how patients can register their recalled devices and the current status of a class action lawsuit being brought by some affected patients.

* The process to obtain reimbursement from Philips for patients who bought a new machine because of the recall.

Philips CPAP Recall Support Group

https://www.facebook.com/groups/496128858116281/

Patients can register their recalled devices here: 

https://www.philipssrcupdate.expertinquiry.com/?ulang=en

Patients who are eligible for compensation should click here:

https://www.respironicscpap-elsettlement.com/

PLEASE NOTE: since this discussion, a consent decree has been issued, here is Philips' statement on it:

https://www.philips.com/a-w/about/news/src-recall-explained

Connect with Emma:

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Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

Click here: ⁠https://a.co/d/1KUzY0O⁠ in the US or search your Amazon store for the title in your country.

Survey for Patients Affected by the Philips CPAP Recall:

https://survey.ucalgary.ca/jfe/form/SV_5aQkIgvUSP0SHBk?Q_CHL=qr

ResMed Product Research Panel

ResMed is currently looking to recruit patients diagnosed with Obesity Hypoventilation, COPD, Neuromuscular Diseases and who are being treated with NIV (regardless of the brand). Click this link to participate:

⁠https://resmed1.qualtrics.com/jfe/form/SV_3WSCJHxVKWu6sPc?Referer=Outreach1⁠

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Dr. Karen Davidson, an expert on measuring nasal function and how that can help sleep apnea patients.

In this episode:

* Why nasal resistance matters for patients with sleep apnea.

* Rhino manometry and how it works to determine nasal resistance.

* Dr. Davidson identifies some of the reasons that rhino manometry hasn't been widely offered to sleep apnea patients in the US.

* Karen shares about her new book, "Breathe Through Your Nose, Don’t Pay Through It: The Impact the Healthcare Industry has on Nasal Function and How We Breathe".

Find it on amazon here: https://a.co/d/aKJvksr

Connect with Dr. Davidson:

https://www.instagram.com/_thenoseknows

https://www.linkedin.com/in/dr-karen-parker-davidson-aprn-6682742b/

https://www.facthcg.com/

Connect with Emma:

⁠⁠⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

Click here: https://a.co/d/1KUzY0O in the US or search your Amazon store for the title in your country.

ResMed Product Research Panel

ResMed is currently looking to recruit patients diagnosed with Obesity Hypoventilation, COPD, Neuromuscular Diseases and who are being treated with NIV (regardless of the brand). Click this link to participate:

https://resmed1.qualtrics.com/jfe/form/SV_3WSCJHxVKWu6sPc?Referer=Outreach1

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences with medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.