Sleep Apnea Stories

Emma is joined by Bob File, a former MLB player recently diagnosed with obstructive sleep apnea.

In this episode:

* Bob's career in major league baseball playing for the Toronto Blue Jays.

* His childhood and history of allergies, asthma and disrupted sleep.

* Bob's interest in fitness and performance and noticing he struggled to run long distances.

* Working with Pulmonologists and hearing about sleep testing but rejecting the idea of spending the night in a sleep lab.

* Bob's doctor noticing elevated red blood count levels and suggesting a sleep test to rule out sleep apnea.

* The combination of teeth grinding, night sweats and daytime sleepiness prompted Bob to do a home sleep test.

* Starting CPAP and really struggling the first few weeks. Bob on working with Jason Sazama of AXG Diagnostics to help refine his CPAP settings.

* Bob on combining a mouthguard with CPAP and Emma on combining her oral appliance and CPAP together.

Connect with Bob:

LinkedIn

https://www.linkedin.com/in/bobfile/

X(Twitter)

https://twitter.com/BobFile

Connect with Jason Sazama

Sleep tech and host of the "Lanky Lefty 27" YouTube channel

https://www.youtube.com/channel/UCg_Rj5qrxlCo4OX6MMq08gQ

https://axgsleepdiagnostics.com/

Emma's Sleep Apnea Stories podcast episode with Jason Sazama

https://podcasts.apple.com/us/podcast/52-jason-sazama-cpap-with-a-sleep-tech/id1523358819?i=1000553425660

Connect with Emma:

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*NEW* - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

⁠⁠⁠⁠⁠Click here⁠⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country.

US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:

⁠⁠⁠⁠https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY⁠⁠⁠⁠

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Dr. Sahil Chopra, co-founder and CEO at Empower Sleep, a virtual care platform allowing people to get personalized sleep care in the comfort of their homes.

In this episode:

* Emma's experience trying out the Empower Sleep platform.

* Dr. Chopra's background from medical training in India to continuing his training in California and completing a fellowship at Harvard.

* Sahil's discovery of sleep as a specialty and experiencing how broken the medical system was for patients.

* Starting 'Empower Sleep' to change the patient experience.

* Sleep Apnea as a chronic illness that needs remote patient management over the long term.

* Dr. Chopra seeing patients with well-controlled sleep apnea but poor sleep quality.

* How Dr. Chopra approaches complex cases to improve patients' sleep.

* Looking at data from a Sleep Image ring over time to allow patients and their doctor to see what works and what doesn't with their sleep.

* The importance of using FDA-approved medical-grade sleep diagnostic tools.

* How patients pay for care under the Empower Sleep model.

* Dr. Chopra's experience looking at more complicated cases and how they try different options and monitor the outcomes.

Connect with Dr. Chopra:

https://www.empowersleep.com/

https://www.instagram.com/empowersleep/

⁠https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3014237/⁠⁠

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3998090/

Connect with Emma:

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*NEW* - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

⁠⁠⁠⁠Click here⁠⁠⁠⁠ in the US or search your Amazon store for the title in your country.

US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:

⁠⁠⁠https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY⁠⁠⁠

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by "Sleep Doctor Chris" from Instagram, AKA Dr. Chris Allen, a Pediatric Neurologist and Sleep Specialist.

In this episode:

* Becoming a sleep influencer on social media to help raise awareness about sleep issues.

* Chris shares his own journey with OSA and how it helps him to relate to the experiences his OSA patients have.

* Attending a conference and leaving CPAP behind and realizing how much worse he felt without CPAP therapy.

* Discovering the University of Chicago sleep clinic for pediatrics and then completing a fellowship at the University of Michigan.

* Normalizing the need to attend regular CPAP checkups as sleep apnea changes over time and the pressures needed can change.

* Dr. Allen on the range of options available to treat obstructive sleep apnea.

* Misunderstandings between minimum usage requirements vs. using the CPAP every time you sleep.

* The importance of representation as a black doctor with OSA.

Connect with Chris:

www.instagram.com/sleepdrchris

Connect with Chris's wife:

https://www.instagram.com/wiseweightmanagement

Connect with Emma:

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⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

*NEW* - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

⁠⁠⁠Click here⁠⁠⁠ in the US or search your Amazon store for the title in your country. Librarians and bookstore owners, the workbook is also available to order on Ingram Sparks now and it comes out on that platform on 1st October 2023.

US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:

⁠⁠https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY⁠⁠

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Lindsay Scola who speaks about her journey to diagnosis with Narcolepsy and Upper Airway Resistance Syndrome.

In this episode:

* Lindsay shares about her childhood and moving into politics after college.

* Working on the Obama campaign and for President Obama in the White House.

* Moving to LA to work in the entertainment industry.

* How sleepiness symptoms showed up in Lindsay's life and how difficult it is to spot a sleep disorder when everyone is talking about being tired in work settings.

* Getting a diagnosis with narcolepsy and how different symptoms felt to Lindsay compared with media portrayals of that sleep disorder.

* Testing negative for sleep apnea in home sleep tests and during an in-lab polysomnogram.

* Eventually receiving a diagnosis of UARS (upper airway resistance syndrome).

* Finding a dental sleep medicine provider because she was married to her sleep doctor.

* Lindsay's experience of dealing with the stimulants shortage.

Connect with Lindsay:

https://www.instagram.com/lindsay.scola

https://www.linkedin.com/in/lindsay-scola-a75b431/

Connect with Emma:

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⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

*NEW* - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

⁠⁠Click here⁠⁠ in the US or search your Amazon store for the title in your country. Librarians and bookstore owners, the workbook is also available to order on Ingram Sparks now and it comes out on that platform on 1st October 2023.

Emma speaking at the virtual PCOS CON event: https://www.pcoscon.org/

Emma speaking at the Carolina Sleep Society: click here

US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:

⁠https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY⁠

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Olivier Lauzeral, General Manager at Somnics Health, the maker of iNAP Sleep therapy for OSA treatment.

In this episode:

* Olivier describes his background and how he became interested in solutions for sleep apnea.

* The iNAP device and how it works to treat OSA by using negative pressure to open the airway.

* How to try the iNAP device through their website if your doctor does not offer it.

* Cleaning of the iNAP and how often to replace parts.

* The FDA approval of the device and a recent change allowing doctors to titrate the iNAP to patients of all severity levels of OSA.

Connect with Olivier:

https://www.inapsleep.online/

https://support.inapsleep.online/hc/en-us

https://www.facebook.com/inapsleep.online

https://www.linkedin.com/in/olivierlauzeral/ 

Connect with Emma:

⁠⁠⁠⁠⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

*NEW* - Order "The 6-Week CPAP Solution Workbook" by Emma Cooksey now!

I took everything I know about CPAP and solving CPAP problems and I put it all in a short, easily accessible workbook for new and struggling CPAP users.

⁠Click here⁠ in the US or search your Amazon store for the title in your country. Librarians and bookstore owners, the workbook is also available to order on Ingram Sparks now and it comes out on that platform on 1st October 2023.

US and Canadian patients affected by the Philips CPAP recall. Please complete this survey:

https://survey.ucalgary.ca/jfe/form/SV_cM7jj2mP2RapabY

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma interviews some attendees and exhibitors at the AAPMD's Collaboration Cures 2023 conference.

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Dr. Michael Grandner, a clinical psychologist and sleep researcher from the University of Arizona.

Book recommendations:

Emma is joined by Dr. Scott Saunders D.D.S., a dentist and obstructive sleep apnea patient.

In this episode:

* Sleep issues that began in childhood and were exacerbated by the development of obstructive sleep apnea.

* Seeing a psychiatrist who ordered the sleep study that led to a diagnosis of severe obstructive sleep apnea.

* Cognitive behavior therapy and how it didn't work well for Scott.

* CPAP and how difficult Scott found it to sleep with that therapy.

* Getting an oral appliance and finding it failed to effectively treat Dr. Saunders' severe sleep apnea.

* Having a CBCT scan to show the airway and Dr. Bill Hang's evaluation and recommendation of MMA surgery.

* The year Dr. Saunders spent to get his Inspire Implant approved by medical insurance.

* Scott explains his hypoglossal nerve stimulator surgery and turning on the Inspire Implant.

* Coping with anxiety using tapping solution recordings and binaural beats.

Connect with Dr. Saunders

Inspire videos https://www.healthymouthmedia.com/inspire

Connect with Emma:

Get on the email list ⁠⁠⁠⁠here⁠⁠⁠⁠

Follow the podcast on Instagram:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Email Emma at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.sleepapneastories.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Sponsors:

BetterHelp⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ https://www.betterhelp.com/emma⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ for 10% off your first month of online therapy

NEW! Support the Podcast!

If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcasters.spotify.com/pod/show/emma-cooksey⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Click "Support this Podcast".

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Dr. Kevin Coppelson, an oral and maxillo-facial surgeon at the Breathe Institute in Los Angeles, CA.

In this episode:

* Dr. Coppelson explains how narrow nasal cavities can lead to mouth breathing, nasal obstruction, and sleep problems.

* Not having enough space for the tongue to rest at the roof of the mouth and why that causes problems breathing at night.

* Nasal resistance and how that leads to collapsing of the airway.

* Dr. Coppelson explains all the existing techniques for palate expansion including SARPE, DOME, and EASE.

* The M.I.N.D. (Minimally Invasive NasoMaxillary Distraction) technique Dr. Coppelson has developed and the benefits he sees for patients.

* Dr. Zaghi's M.I.N.D. procedure and how it felt to perform surgery on a colleague and friend.

* CBCT scans and the paper Dr. Coppelson and Dr. Zaghi wrote, read it here: https://pubmed.ncbi.nlm.nih.gov/36841260/

* Dr. Coppelson's definition of success as a cure for his patients rather than the lesser standard of the 'Sher' criteria commonly used to assess the success of surgical procedures treating sleep apnea.

* MMA surgery and how Dr. Coppelson is getting great results with strong 3D-printed titanium plates.

Connect with Dr. Coppelson:

https://www.drcoppelson.com/

https://www.instagram.com/drcoppelson/

https://www.facebook.com/drcoppelson

https://www.youtube.com/@kevincoppelsonmddds6718

https://youtu.be/jr3GMub3afc (Webinar)

Connect with Emma:

Get on the email list ⁠⁠⁠here⁠⁠⁠

Follow the podcast on Instagram:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Email Emma at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.sleepapneastories.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Sponsors:

BetterHelp⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ https://www.betterhelp.com/emma⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ for 10% off your first month of online therapy

NEW! Support the Podcast!

If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcasters.spotify.com/pod/show/emma-cooksey⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Click "Support this Podcast".

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.

Emma is joined by Dr. Ana Luisa Vieira, a Respiratory and Sleep Medicine Physician practicing at Hospital de Braga in Portugal.

In this episode:

* Dr. Vieira explains gender differences and unique aspects of obstructive sleep apnea in women.

* She covers prevalence, symptoms, diagnosis, health consequences, and treatment.

* Sleep apnea medical care in Portugal.

* Central sleep apnea - the difference in classification from ICSD and ERJ TF from 2017, different types of CSA and respective treatments.

* Dr. Vieira explains central sleep apnea related to heart failure and explores findings regarding the safety of ASV.

* Treatment-emergent CSA and the importance of adequate classification, diagnosis, and interpretation.

Connect with Dr. Vieira

www.instagram.com/analuisapvieira

Some biblio references discussed in this episode:

ICSD https://learn.aasm.org/Listing/a1341000002XmRvAAK. ERJ TF/Statement 2017 by Prof Winfried RanderathRanderath W, Verbraecken J, Andreas S, Arzt M, Bloch KE, Brack T, Buyse B, De Backer W, Eckert DJ, Grote L, Hagmeyer L, Hedner J, Jennum P, La Rovere MT, Miltz C, McNicholas WT, Montserrat J, Naughton M, Pepin JL, Pevernagie D, Sanner B, Testelmans D, Tonia T, Vrijsen B, Wijkstra P, Levy P. Definition, discrimination, diagnosis and treatment of central breathing disturbances during sleep. Eur Respir J. 2017 Jan 18;49(1):1600959. doi: 10.1183/13993003.00959-2016. PMID: 27920092.

https://erj.ersjournals.com/cgi/pmidlookup?view=long&pmid=27920092About aSV. SERVE-HF Trial. Advent-HF Trial. FACE TrialTamisier R, Damy T, Bailly S, Davy JM, Verbraecken J, Lavergne F, Palot A, Goutorbe F, d'Ortho MP, Pépin JL; FACE study investigators. Adaptive servo ventilation for sleep apnoea in heart failure: the FACE study 3-month data. Thorax. 2022 Feb;77(2):178-185. doi: 10.1136/thoraxjnl-2021-217205. Epub 2021 Jul 6. PMID: 34230094; PMCID: PMC8762030.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8762030/About the term complex sleep apnea / TECSA . Javaheri S; Smith J; Chung E. The prevalence and natural history of complex sleep apnea. J Clin Sleep Med 2009;5(3):205-211https://doi.org/10.5664/jcsm.27486

Connect with Emma:

Get on the email list ⁠⁠here⁠⁠

Follow the podcast on Instagram:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ @sleepapneastories⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Email Emma at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.sleepapneastories.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

Sponsors:

BetterHelp⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ https://www.betterhelp.com/emma⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ for 10% off your first month of online therapy

NEW! Support the Podcast!

If you would like to support Emma and the 'Sleep Apnea Stories' podcast, you can now contribute monthly.

⁠⁠⁠⁠⁠⁠⁠⁠⁠https://podcasters.spotify.com/pod/show/emma-cooksey⁠⁠⁠⁠⁠⁠⁠⁠⁠ Click "Support this Podcast".

Disclaimer: This podcast episode includes people with sleep apnea discussing their experiences of medical procedures and devices.  This is for information purposes only and you should consult with your medical professionals before starting or stopping any medication or treatment.