By Tony Mantor
Autism is a complex neurodevelopmental condition that affects millions of people worldwide.
It is characterized by difficulties in social interaction, communication, and repetitive behaviors. <
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Discover the critical financial strategies that can transform the lives of families with autism in our latest episode of "Why Not Me."
Join us as we sit down with Andrew Smith, an experienced financial planner who specializes in guiding families with special needs.
With a personal connection to the cause, Andrew delves into the complex world of government benefits like SSI, SSDI, and Medicaid, shedding light on how families can navigate these programs while addressing unique financial needs such as medical and travel expenses. His insights emphasize the importance of personalized planning and utilizing specialized tools to create secure financial futures.
Ever wondered how to manage the financial complexities that come with an autism diagnosis?
Andrew walks us through the essential first step of securing case management and introduces the ABLE plan—a game-changing financial tool for individuals with disabilities. Similar to a 529 college savings plan, the ABLE plan allows for savings beyond the typical asset limits without jeopardizing benefits.
Andrew explains how understanding state-specific rules and investment options can provide a hopeful and clear path forward for families, easing the emotional and financial burdens that come with such diagnoses.
Protecting assets for children with autism is a crucial task for any parent, and Andrew lays out the importance of third-party special needs trusts in this episode. Learn how these trusts can ensure that assets are managed according to the parents' wishes without disqualifying the child from necessary aid.
We also cover the role of professional trustees and the vital need for educating both clients and advisors to improve service quality.
Through Andrew's expertise, we aim to inspire and reassure families, showing them that they are not alone on this challenging, yet hopeful, journey towards a secure financial future.
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What happens when your child's first words start to disappear?
That's the heart-wrenching question Michelle Morton faced as her son's communication skills regressed and sensory challenges emerged.
In this episode of "Why Not Me? The World," Michelle takes us through her powerful journey, highlighting a pivotal moment at Chuck E. Cheese that confirmed their suspicions of autism.
Through her candid storytelling, Michelle shares how specialized therapies at High Hopes in Franklin, Tennessee, and the adoption of sign language helped her son make remarkable strides in communication.
Navigating the complexities of raising an autistic child within an inclusive school system is no small feat.
Michelle opens up about the crucial role a supportive educational environment has played in enhancing her son's social interactions and speech.
Listeners will gain insight into the daily challenges of sensory sensitivities, feeding therapy, and family dynamics.
Michelle's account vividly illustrates the triggers of meltdowns, the importance of self-regulation, and her son's ability to hyper-focus on certain interests, providing a nuanced picture of their experiences and milestones.
Looking toward the future, Michelle reflects on the hopes and challenges that lie ahead over the next five years.
She emphasizes the necessity of consistent therapy and the heartening progress her son has made, from developing a love for baseball to showing affection more freely.
The episode concludes on a note of gratitude and inspiration, inviting listeners to share their own compelling stories.
Tune in to celebrate resilience, progress, and the unwavering support that defines Michelle's journey with her son.
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Imagine discovering a new facet of your identity just as you are navigating the already tumultuous waters of menopause.
That's the reality for many autistic individuals, and today we’re thrilled to have researchers Rachel Mosley and Eunhee Kim share their eye-opening findings on this deeply personal and under-researched topic.
Uni's initial investigation into the high rates of suicidality among autistic people led her to Rachel, and together they embarked on a groundbreaking study funded by the UK organization Henpict.
This episode unpacks the complex interplay between autism and menopause, revealing the unique struggles and resilience of those living through it.
Rachel and Eunhee shed light on how masking and self-image can become particularly challenging during menopause.
Some women only learn about their autism at this stage, adding another layer to their experience.
We discuss vital coping strategies, from seeking information to building supportive communities, while also addressing the more harmful paths some may take, such as self-injury.
Social support from other autistic individuals or empathetic friends and family is highlighted as essential.
Our conversation underscores the importance of tailoring research to meet the real needs of autistic individuals, guided by feedback from an autistic advisory panel.
Rachel's personal journey of discovering her autism later in life adds depth to our discussion, illustrating how this realization reshaped her self-perception and professional focus.
Her story highlights the power of shared experiences and the importance of fostering trust and empathy in research.
By bridging understanding between autistic and neurotypical experiences, especially during complex life stages like menopause, Rachel's work aims to provide crucial information and support.
We wrap up by inviting listeners to engage with us and share their own stories, reinforcing the community spirit that drives our show, "Why Not Me?"
Join us for an episode that promises to enlighten and connect us all through shared understanding and support.
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How does an autistic individual navigate life’s challenges to find joy and purpose in a supportive community?
Join us on this episode of "Why Not Me? The World Podcast" as we welcome Joe Gilotti, a remarkable man who has turned his diagnosis of Asperger's into a journey of resilience and triumph.
Joe takes us back to his childhood, sharing the hurdles he faced during his school years and the bullying that tested his resolve.
With the support of his family and the nurturing environment at Winston Preparatory School, Joe found his footing and began to thrive.
The Prospector Theater isn't just a place of employment for Joe, it's a cornerstone of his personal growth.
We hear about the heartwarming moments that make the theater a beacon of inclusivity, like the joy of a young employee with Down syndrome celebrating her new job.
Joe's nearly decade-long journey at the theater saw him evolve from working in embroidery to running a small business and exploring his passion for graphic design and cosplay.
The theater's mission of providing meaningful employment to people with disabilities has profoundly shaped Joe’s life, giving him the confidence to live independently and fostering a deep sense of acceptance and friendship.
Our conversation wraps up with a look at the vibrant community and strong sense of camaraderie that makes the Prospector Theater so unique.
Joe shares the theater’s origin story and its mission-driven culture, emphasizing the importance of inclusive employment opportunities.
As we conclude this heartfelt episode, we express our immense gratitude to Joe for sharing his extraordinary journey.
We invite our listeners to connect with us for more inspiring stories and to consider how they, too, can make a difference in their communities.
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Beth Pilchik opens up about her powerful journey as both a publicist dedicated to businesses serving neurodiverse individuals and as a mother navigating the often turbulent waters of raising an autistic child.
From the poignant moment of her son Matthew's diagnosis to the daunting task of finding the right educational programs and early interventions, Beth's story is one of resilience, love, and perseverance.
Tune in to hear how she confronted the emotional and practical challenges head-on, all while shedding light on the significant gaps in resources available to parents just a decade ago.
Managing multiple co-existing conditions such as autism, ADHD, ARFID, and sensory processing issues can feel like an insurmountable challenge, but Beth shares a wealth of practical strategies that have proven invaluable for her family. Listen to her insights on establishing structured routines, creating tailored sleep schedules, and maintaining open communication with educators.
Beth also details her approach to overcoming ARFID through incremental food introductions and emphasizes the need for a balanced approach that merges structure with emotional support.
Her goal-oriented mindset offers a beacon of hope and practical advice for other parents facing similar challenges.
Beth's narrative doesn't stop at the trials; it also celebrates the triumphs of raising a neurodiverse child.
Revel in the stories of Matthew's achievements, from his bar mitzvah to his creative exploits in drawing and world-building.
Discover the deep bond between Matthew and his younger brother Miles, and how they connect through shared activities like Fortnite.
Beth underscores the importance of community, sharing resources, and the joy that comes from embracing neurodiversity.
Her heartfelt advice emphasizes adaptability, the power of a strong support network, and the enduring value of kindness, leaving listeners with a sense of gratitude and a renewed perspective on the beauty of neurodiversity.
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Unlock the secrets to navigating the neurotypical world as we sit down with Kate and Missy from Social Connections, a pioneering Nashville-based organization. Discover how their journey, which began in 1993 at Vanderbilt's psychiatric hospital, has evolved to support the unique social and dating needs of young autistic adults.
Kate and Missy share invaluable insights on helping neurodiverse individuals thrive without altering their inherent traits, offering a fresh perspective on integrating mental health support with autism.
Our discussion dives deep into the importance of individualized support strategies for autistic individuals, whether it's enhancing social skills, dating, or vocational training.
We explore the often-overlooked gender differences in symptom masking and how this impacts the mental health of autistic females.
Learn about the essential role of self-advocacy in the workplace and why educating employers about autism can lead to more inclusive environments.
Kate and Missy provide practical advice on managing anxiety, depression, and the stressors that come with navigating a neurotypical world.
Finally, hear about the ambitions and achievements of Social Connections, including their vision for growth and the inspiring success stories that keep them motivated.
From overcoming family dynamics to the importance of vocational assessments, this episode is a treasure trove of guidance for anyone interested in supporting the autistic community.
Tune in to understand how genuine communication and shared interests can make a significant difference, and see how Social Connections is expanding beyond Nashville to touch lives through telehealth services.
Join us for an episode filled with hope, expertise, and actionable advice.
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Ever wondered how to navigate the challenges of raising a child with autism? Join us for an eye-opening conversation with John Brown, the First Responder Program Manager for the Autism Society of America, and an autistic dad to Wyatt, his non-speaking 8-year-old son.
John shares his heartfelt journey, from recognizing the early signs of autism to Wyatt's use of an AAC device for communication.
We touch on Wyatt's unique sensory preferences, the hurdles with textures and lighting, and how these factors shape their family's dynamics, especially in co-parenting with John's ex-wife.
John's personal anecdotes provide a raw and real perspective that any parent or caregiver can relate to.
What happens when law enforcement encounters an autistic individual? John dives deep into the pressing need for autism awareness within the police force, EMTs, and firemen.
Through his role, he has spearheaded the Autism Society of America's first responder training program, which educates officers on autism and effective de-escalation techniques.
We recount a real-life incident where an autistic young man was mistakenly taken to a police precinct, shedding light on the gaps in understanding.
Discover how this training program, developed with input from law enforcement, parents, and autism experts, is being customized for various communities and garnering positive feedback from officers eager to improve their interactions with autistic individuals.
Patience and acceptance are more than virtues—they're necessities. We emphasize the importance of treating others as we wish to be treated, acknowledging that behaviors are temporary and should not define people.
From understanding the emotional intensity experienced by autistic individuals to simply asking if someone needs assistance, small acts of compassion can make a significant difference.
This episode is a powerful testament to the impact of empathy and education in creating a more inclusive society.
Tune in and be inspired by John Brown's wisdom and dedication to fostering better understanding and support for the autism community.
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What does it take to turn frustration into a thriving nonprofit that changes lives? Meet Danny Combs, a devoted father whose journey of supporting his autistic son, Dylan, led to the creation of TACT, an organization that empowers autistic individuals through trades and crafts.
Discover the deeply personal story of Dylan's early autism diagnosis and the signs that led to it, as Danny shares the unique challenges Dylan faces as a teenager, from navigating social situations to dealing with bullying.
Learn about the critical role of effective communication with educators and the evolving support within the school system.
Hear how a meeting with Dr. Temple Grandin and Dylan's natural talent for trades inspired Danny to start TACT in the back of a '58 Chevy panel truck.
Now based in Inglewood, Colorado, TACT serves over 600 students annually with plans to expand to Queens and Austin.
We discuss the impressive placement rates and the organization’s partnerships with major companies, the challenges of maintaining focus, and the continuous need for funding.
Danny also opens up about the unexpected educational role he has taken on, teaching others about autism and neurodiversity, and the broader mission of changing societal perceptions of what autistic individuals can achieve.
Explore the transformative impact of TACT's hands-on, project-based programs that foster teamwork and social skills, and the vital importance of parental involvement.
Danny emphasizes recognizing and validating the fears and thoughts of individuals with autism, addressing financial challenges, and ensuring inclusivity through TACT's scholarship program.
This episode is a powerful testament to the unwavering support of parents and community efforts in empowering autistic individuals and breaking down barriers. Join us for an inspiring conversation that highlights the profound difference one father’s dedication can make.
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Discover the profound journey of Barry Prizant, one of the leading voices in autism research, as he shares his rich experiences and insights on "Why Not Me."
From his early days at residential summer camps for individuals with disabilities to becoming a pivotal figure in the field, Barry's story is one of passion and dedication. Learn how his academic training in speech and language pathology and psycholinguistics, coupled with hands-on experience, helped shape a more compassionate understanding of autism, moving away from outdated theories like the "refrigerator mother" notion.
Uncover the heartwarming tale behind a bestselling book on autism that has resonated globally, translated into 26 languages.
This episode explores the author's shift from academic writing to heartfelt storytelling, weaving research with personal narratives that appeal to a diverse audience.
We also delve into the importance of honest conversations in the autism community, highlighting the CERTs educational framework and the significance of understanding emotional regulation rather than merely controlling behavior.
Hear from experts and families who share their experiences, offering a well-rounded perspective on autism awareness and support.
Get inspired by the unique stories from autistic individuals themselves, like Justin, an artist living independently and making a difference in his community.
This episode underscores the importance of listening to and learning from autistic voices, reflecting on how personal connections and mutual support can foster a more inclusive society.
As we wrap up, we reflect on the mutual benefits of personal connections and encourage listeners to share the podcast and its inspiring stories.
Join us for an episode filled with empathy, insight, and a powerful call to engage with and support the autism community.
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Unlock the secrets to overcoming personal challenges and finding your voice with Tom Iland, an extraordinary autistic coach, author, and Toastmasters accredited speaker.
In this episode of "Why Not Me, the World?", Tom takes us through his transformative journey from his autism diagnosis at age 13 to becoming a beacon of inspiration for many.
Learn how he navigated early signs of autism, including lining up toys and sensory sensitivities, and how he cultivated a genuine interest in others.
Tom's story is a testament to resilience, as he shares how influential self-help books and his unique experiences have empowered him to uplift others within the autism community.
Join us as Tom delves into his transition from high school to college, shedding light on critical lessons about social awareness and conduct.
Understand the nuances of body language, vocal variety, eye contact, and touch, especially for those on the autism spectrum.
We also discuss the societal need for better autism understanding, including the crucial distinction between tantrums and meltdowns that even police officers should be trained to recognize.
Tom's career shift from accounting to public speaking, coaching, and consulting on diversity and inclusion is highlighted, emphasizing his mission to reduce unemployment rates among autistic individuals and spread awareness.
Hear Tom's insights on navigating mental health challenges and his dedication to helping others through his work.
We discuss his book "My Glass is Full: Stories of Putting Mental Health First," offering guidance for anyone struggling post-COVID.
Tom also previews his upcoming book, "They Said We Couldn't, So We Did," co-written with his fiancée, which focuses on overcoming relationship hurdles.
With valuable tips on managing sensory overload and stress, Tom's message of perseverance and valuing unique contributions offers hope to all listeners.
Don’t miss out on where you can find Tom's enriching books and the heartfelt gratitude we express for his invaluable insights.
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intro/outro music bed written by T. Wild
Why Not Me the World music published by Mantor Music (BMI)
The podcast currently has 61 episodes available.