March 07, 2025

006 和林三土聊残障视角下的安乐死：死的自主与活的尊严 Discussing Euthanasia: Autonomy in Death and Dignity in Life

1 hour 20 minutes

【聊了什么 The What】

当我们热烈讨论"有尊严地死去"的权利时，是否曾停下来思考，有多少人尚未获得"有尊严地活着"的条件？在当代政治与伦理的激辩场上，安乐死权利被包装为自由与选择的象征，但在一个对残障理解不足的社会里，这种自由选择是否真的如表面般简单？

仁慈与林三土展开了一场关于安乐死的深度对话，试图穿透这个议题表面的浪漫色彩，直面其背后的复杂张力。从纳粹德国的T4计划到现代医疗系统的结构性缺陷，从残障者的日常挣扎到生命尊严的多元解读，这场对话展现了安乐死辩论中常被忽视的残障视角。

When we passionately debate the right to “die with dignity,” have we ever paused to ask how many people still lack the conditions to “live with dignity”? In the contemporary arena of political and ethical debates, the right to euthanasia is often presented as a symbol of freedom and personal choice. But in a society that lacks a thorough understanding of disability, is that freedom and choice really as straightforward as it seems?

In this in-depth conversation, Mercy and Lin Santu discuss euthanasia and attempt to cut through its romanticized veneer, confronting the complex tensions beneath the surface. From Nazi Germany’s T4 program to the structural shortcomings of modern healthcare systems, from the daily struggles of people with disabilities to the multifaceted interpretations of dignity in life, their dialogue highlights the perspectives on euthanasia that are often overlooked by mainstream debates.

【时间轴 The When】

00:00:00 什么是高质量的生活?从残障视角重新思考生命的价值

00:05:38 安乐死的不同形式:主动与被动安乐死的区分

00:06:58 痛苦与自主选择:安乐死权益的基本诉求

00:25:31 早期安乐死运动中的偏见:对残障生活的误解

00:32:02 医患关系中的信息不对等:如何做出真正知情的选择?

00:37:48 现有安乐死法案中缺失的残障视角

00:47:53 家庭压力下的"自主"选择

00:52:22 照护责任应由社会承担而非个人

01:18:24 在追求"尊严死"之前,应先确保"尊严活"

00:00:00 So-called “life quality”: Rethinking the value of life from a disability perspective

00:05:38 Different forms of euthanasia: Distinguishing between active and passive euthanasia

00:06:58 Pain and autonomy: The fundamental demands of the right to euthanasia

00:25:31 Early euthanasia movements: Misunderstandings surrounding the lives of disabled people

00:32:02 Information asymmetry in doctor-patient relationships: How can we make truly informed choices?

00:37:48 The missing disability perspective in current euthanasia laws

00:47:53 “Autonomous” decisions under family pressure

00:52:22 Care responsibilities should be borne by society, not individuals

01:18:24 Before striving for a “dignified death,” we must first ensure a “dignified life”

【我们是谁 Who We Are】

残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。

“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.

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