In this very special episode Sinead is joined by a mother of 2 Danielle Cullinan to talk about Angelman Syndrome - a very rare genetic disorder that her eldest daughter Clara was born with. 

In this episode she takes us on an extraordinary journey to a diagnosis, connecting with other families who have a child with Angelman Syndrome, how she had her husband both found different coping strategies and their decision to have another baby. 

We also talk about the realities of a severely disablied child in a society that isn’t build to support them. From being told that Clara could no longer attend creche to the chance that there will not be a school place for her either - this episode shines a light on how a young family are trying to work, parent, love and seem to have to fight for what Clara needs at every turn.

everymum the podcast is supported by WaterWipes, the world’s purest baby wipes, made with only two ingredients, 99.9% purified water and a drop of fruit extract.

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