Sleep Apnea Stories

Sleep Apnea Stories

By Emma CookseyHealth & Fitness
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Sleep Apnea Stories episodes

  • 61 - Dr. Allan Pack - Sleep Apnea Research, Excessive Daytime Sleepiness

    Emma is joined by Dr. Allan Pack, a researcher at the University of Pennsylvania.  Together they discuss:

    * How obstructive sleep apnea patients don't fall neatly into one category.

    * Use of the Epworth Sleepiness Scale and other questions to group participants based on their sleepiness and how likely they were to doze.

    * Looking at participants in different sleepiness groups and what happened to their sleepiness after 2 years of CPAP.

    * Some theories on why people might remain sleepy despite CPAP adherence.

    * Dr. Pack talks about the future of diagnostics in sleep using wearables and telehealth.

    * Developing biomarkers for obstructive sleep apnea.

    Find out more about Dr. Pack and his research here 

    This episode is sponsored by 

    Inspire https://www.inspiresleep.com/

    Airway Management https://tapintosleep.com/

    BetterHelp https://www.betterhelp.com/emma

    Follow the podcast on Instagram: @sleepapneastories

    Email Emma at [email protected]

    www.sleepapneastories.com

    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

    44 min
  • 60 - Emma Cooksey - ENT visit, Allergies, CPAP and Palate Expansion update

    Emma finishes up season 6 with an update on her own journey to improve her sleep apnea.  She covers:

    * Her progress with using removable palate expansion appliances and switching from DNA appliances to an mmRNA appliance - seeing airway expansion on a CBCT scan.

    * Consulting with an ENT on nasal inflammation solutions.

    * Emma explains working with a sleep tech to improve her CPAP settings.

    * Simple things that can help some people with sleep apnea - sleep position, inspiratory muscle trainers, myofunctional therapy exercises and buteyko breathwork.

    Throat Exercises - https://youtu.be/2nq8YjWIIUI - Dr Vik Veer on his great youtube channel explaining the exercises he has his patients do to strengthen their oropharyngeal muscles.

    Buteyko Breathwork - https://buteykoclinic.com/ - they have a lot of free resources including youtube videos with breathwork exercises.

    Emma's Article with pics of palate expansion - https://rtsleepworld.com/2022/04/29/seeing-red-my-palate-expansion-journey/

    Graham Stoney's blog article on palate expansion techniques from a patient perspective - https://cfs-survivors.org/blog/2020/10/27/why-i-chose-dna-over-homeoblock-mse-dome-mma-and-agga/

    Follow the podcast on Instagram @sleepapneastories

    This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Bleep Sleep

    Special offer for Sleep Apnea Stories podcast listeners:

    Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:

    https://www.sleepapneastories.com/services

    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

    34 min
  • 59 - Dr. Mike Pagano & Mike Durkee - Oral Appliance Therapy in the Military

    Emma is joined by Dr. Mike Pagano, a dentist specializing in oral appliance therapy and Mike Durkee, Executive Director of the Wounded Veterans' Relief Fund.  Together they discuss:

    * Dr. Pagano and Mike Durkee both share details of their active duty military service.

    * Some of the systemic problems preventing oral appliance therapy from being used more widely in the military.

    * Dr. Pagano explains a dental sleep medicine program he started at Fort Riley, KS to treat soldiers with obstructive sleep apnea using oral appliances.

    * Mike describes his personal journey to diagnosis with sleep apnea and how he went straight to treatment with a CPAP.  He is disappointed he didn't hear about oral appliance therapy at the time of diagnosis.

    * Coverage of oral appliance therapy by medical insurance in the United States.

    * The need for much more education among dentists, sleep specialists and the general public about the availability and accessibility of oral appliance therapy.

    * Future developments in oral appliance therapy tracking chips making it possible to track objective data on a patient's compliance and their treatment efficacy.

    * Mike explains the common life circumstances faced by veterans, including homelessness and unemployment, and how the WVRF helps with these.

    Learn more about the Wounded Veterans' Relief Fund here: https://wvrf.org/

    Learn more about Dr Pagano's dental practice specializing in oral appliance therapy for sleep apnea here: https://vatotalsleep.com/

    Follow the podcast on Instagram @sleepapneastories

    This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Bleep Sleep

    Special offer for Sleep Apnea Stories podcast listeners:

    Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:

    https://www.sleepapneastories.com/services

    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

    54 min
  • 58 - Renata Nehme - Myofunctional Therapy and Sleep Apnea

    Emma is joined by Renata Nehme, a Myofunctional Therapist and founder of the Airway Circle.  Together they discuss:

    * Beginning as a Dental Hygienist and then discovering Myofunctional Therapy training.

    * Renata's own story of mouth breathing as a child which she thinks affected her facial development.

    * How Myofunctional Therapy can help people with sleep apnea as a secondary therapy, not a first-line treatment.

    * Issues in parenting affecting kids' airway and facial development.

    * The different ways a tongue-tie can be released.

    * Renata talks about setting up the Airway Circle, a group to foster interdisciplinary collaboration among airway professionals.

    Follow Renata on Instagram @myomoves

    www.myo-moves.com

    Follow Airway Circle on Instagram @airwaycircle

    www.airwaycircle.com

    Follow the podcast on Instagram @sleepapneastories

    This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Bleep Sleep

    Special offer for Sleep Apnea Stories podcast listeners:

    Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:

    https://www.sleepapneastories.com/services

    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

    1 hr 4 min
  • 57 - Ryan Jensen - Professional Football and Sleep Apnea

    Emma is joined by Ryan Jensen, a professional football player with the Tampa Bay Buccaneers.  Together they discuss:

    * Working as a professional athlete and not getting the good quality sleep needed for recovery from training sessions.

    * Ryan's journey to diagnosis with sleep apnea and his familiarity with CPAP because his parents both used one. 

    * Using a full face mask and struggling with leaking.

    * Trying DreamPorts by Bleep Sleep and finding it a better solution than the full face mask.

    * Becoming a role model as a professional athlete speaking publicly about living with sleep apnea.

    Follow Ryan on Instagram @redman7715

    Follow the podcast on Instagram @sleepapneastories

    This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ Band Bleep Sleep

    Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:

    https://www.sleepapneastories.com/services

    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.


    33 min
  • 56 - James Nestor - Breathing and Sleep Apnea

    Emma is joined by author and journalist, James Nestor.  His book "Breath: The New Science of a Lost Art" was released in 2020 and became an international bestseller.  In the book, James discusses how the human species has lost the ability to breathe properly - and how to get it back.  Together Emma and James discuss:

    * Some of the issues with the current medical system and its approach to treating sleep apnea.

    * Getting to the root causes of sleep apnea.  

    * Premolar extractions, braces, and headgear - how these orthodontic practices can impact growing faces and airways.

    * CPAP headgear pushing faces backward over time and why that's a problem.

    * How James has grown new bone in his face and improved his breathing using a palate expansion appliance.

    Connect with James, order his books or find his social media handles at https://www.mrjamesnestor.com/

    You can find an excellent Q&A about sleep apnea with Dr. Steven Y. Park on James Nestor's website here: https://www.mrjamesnestor.com/faq

    A great article by Karin Badt on premolar extractions for orthodontic treatment:

    https://karinbadt.medium.com/premolar-extractions-for-orthodontic-treatment-2190344bc7bf

    Emma mentioned Project Sleep's Rising Voices speaker training program.  We need YOUR STORY!  The more people with sleep apnea we can find to share their stories, the more we can raise awareness and improve access to screening, diagnosis, and treatment.  If you have sleep apnea and would like to work with Project Sleep to create a presentation you can give in your community and in the media, click here:

    https://project-sleep.com/2022-rising-voices-application-now-open/

    This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Bleep Sleep

    Sleep Apnea Stories podcast listeners get 20% off Bleep Sleep DreamPorts when shopping with the unique links and codes here:

    https://www.sleepapneastories.com/services

    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.

    47 min
  • 55 - Dr Sairam Parthasarathy - Peer Buddy Support for CPAP
    Emma is joined by Dr Sairam Parthasarathy MD, Professor of Medicine in the Division of Pulmonary, Allergy, Critical Care & Sleep Medicine and the Director of the UAHS Center of Sleep & Circadian Science.  He's also the Medical Director for the Center for Sleep Disorders at the University of Arizona. Together they discuss:
    * Dr Parthasarathy's research into supporting sleep apnea patients with a peer buddy program run by the American Sleep Apnea Association.  
    * A Sleep Research Society panel Dr Parthasarathy chaired on treatment alternatives to PAP therapy.
    * Some of the challenges with integrating treatments like oral appliance therapy into the established medical system.
    * How you can get involved if you'd like to train as a peer Mentor or get help with your CPAP as a Mentee.
    For more information on becoming a Mentor or Mentee with the American Sleep Apnea Association, visit:
    https://www.sleepapnea.org/peer-mentors/mentees/join-asaa/
    Contact Dr Parthasarathy:
    Twitter handle: sai_sparthamd
    Follow the podcast on Instagram: www.instagram.com/sleepapneastories
    This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
    Special offer for Sleep Apnea Stories podcast listeners:
    20% Off Bleep Sleep DreamPorts
    Sleep Apnea Stories podcast listeners get 20% off when shopping with these unique links and codes:
    CODE FOR DREAMWAY CONNECTOR KIT IS: 20EMMADREAM
    THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3988V25QUJTE4
    CODE FOR DREAMPORTS IS: 20EMMAPORTS
    THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3SSBN70B4BV8I
    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
    1 hr 1 min
  • 54 - Jared Scofield - The Guy Who Tried Everything
    Emma is joined by Jared Scofield.  Together they discuss:
    * Jared's experiences with testing for sleep apnea at home and in a sleep clinic.
    * Being prescribed CPAP and struggling to adjust to it.
    * Jared's experience trying oral appliance therapy.
    * Turbinate reduction, sinus surgery and septoplasty with an ENT.
    * Trying new treatment options: iNAP and eXciteOSA.
    * Jared's experience with positional therapy.
    Connect with Jared by email: [email protected] 
    Follow the podcast on Instagram: www.instagram.com/sleepapneastories
    This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
    Special offer for Sleep Apnea Stories podcast listeners:
    20% Off Bleep Sleep DreamPorts
    Sleep Apnea Stories podcast listeners get 20% off when shopping with these unique links and codes:
    CODE FOR DREAMWAY CONNECTOR KIT IS: 20EMMADREAM
    THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3988V25QUJTE4
    CODE FOR DREAMPORTS IS: 20EMMAPORTS
    THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3SSBN70B4BV8I
    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
    1 hr 18 min
  • 53 - Dr. Xiaochuan Yan - Sleep Apnea in China
    Emma is joined by Dr. Xiaochuan Yan, a general surgeon working in China sharing his own story of being diagnosed and treated with sleep apnea.  Together they discuss:
    * Symptoms Dr. Yan experienced for years prior to diagnosis with obstructive sleep apnea.
    * Lack of adequate training about sleep apnea in medical school.
    * Dr. Yan's life-changing diagnosis and treatment with a CPAP.
    * Healthcare provision and sleep apnea treatment in China.
    * The losing weight conundrum many people with sleep apnea struggle with.  Too tired to eat well and exercise which would help their sleep apnea.
    * The need to raise awareness about sleep apnea and increase research funding.
    Contact Dr Yan by email: [email protected]
    Follow the podcast on Instagram: www.instagram.com/sleepapneastories
    This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
    Links Emma mentioned:
    This weekend is Project Sleep's "Sleep In" fundraiser click here to donate: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html or find out more about the 'Sleep In' here: www.project-sleep.com
    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
    52 min
  • 52 - Jason Sazama - CPAP with a Sleep Tech
    Emma is joined by Jason Sazama, the man behind "The Lanky Lefty 27" YouTube Channel.  Together they discuss:
    * Emma's discovery of Jason's YouTube channel and the video topics she found helpful.
    * Common CPAP problems and how Jason addresses them.
    * OSCAR software for analyzing CPAP data and what to look for.
    * Jason's own journey with Hashimoto's and diagnosis with obstructive sleep apnea.
    * The setup Jason uses at night, including his mask recommendations and cleaning routine.
    * Jason's background as a credentialed and experienced sleep tech.  The services he provides through AXG Diagnostics are at-home sleep testing and analysis of OSCAR CPAP data over zoom.
    Jason on YouTube: https://www.youtube.com/c/Freecpapadvice
    Jason's pap therapy data analysis to help you figure out the correct settings for your CPAP: 
    http://axgsleepdiagnostics.com/product/pap-therapy-data-analysis/
    Follow the podcast on Instagram: www.instagram.com/sleepapneastories
    This episode is sponsored by: Somnomed https://somnomed.co/en/find-a-clinic/ and Betterhelp www.betterhelp.com/emma
    Links Emma mentioned:
    To join Emma's fundraising team for Project Sleep's "Sleep In" fundraiser click here: https://projectsleep.salsalabs.org/sleepin2022/t/sleepapneastories/index.html (this is also where to make a donation!).
    Find out more about the 'Sleep In' here: www.project-sleep.com
    20% Off Bleep Sleep DreamPorts
    Sleep Apnea Stories podcast listeners get 20% off when shopping with these unique links and codes:
    CODE FOR DREAMWAY CONNECTOR KIT IS: 20EMMADREAM
    THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3988V25QUJTE4
    CODE FOR DREAMPORTS IS: 20EMMAPORTS
    THE URL TO THE DIRECT AMAZON PAGE IS: https://www.amazon.com/gp/mpc/A3SSBN70B4BV8I
    Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices.  This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
    51 min

About Sleep Apnea Stories

From the publisher's feed

Sleep Apnea Stories is a podcast featuring guests who are coping with sleep apnea and the medical experts who treat them. The goal of the podcast is to shatter stereotypes around sleep apnea. We also want to build a community of people coping with Sleep Apnea to provide inspiration and hope to listeners. Do you have Sleep Apnea? Would you be willing to share your story with our community? If so, I'd love to hear from you! Email: [email protected]

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