Sleep Apnea Stories

By Emma CookseyHealth & Fitness

Sleep Apnea Stories episodes

November 17, 2021 41 - Kajsa Bradley - Sleep Apnea and Mental Health
Emma is joined by Kajsa Bradley. Together they discuss:
* Struggling with depression and anxiety as a teenager but not receiving mental health treatment;
* Kajsa being away from home in Europe and reaching a mental breaking point;
* Starting therapy - feeling shame and judgment about seeking help from a therapist;
* Moving back to Oregon and trying several therapists before finding a great therapeutic match;
* Kajsa having a sleep study and being diagnosed with severe obstructive sleep apnea;
* Feelings of relief because diagnosis gave some treatment options but also having feelings of shame and embarrassment;
* Adjusting to CPAP therapy well, to begin with, but then developing problems with wearing the mask all night;
* Being labelled CPAP "non-compliant" and having surgery with an ENT and seeing a reduction in AHI;
* Kajsa starting a blog to write about her experiences and help other people.
Kajsa's blog: https://www.mentalhealthnaps.com/
Follow Kajsa on Instagram: www.instagram.com/mental_health_naps_
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by: Mute Nasal Dilators www.mutesnoring.com and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
1 hr 14 min
October 13, 2021 40 - Teresa DeNike - Sleep Coaching
Emma is joined by Teresa DeNike at Sleep Better NYC. As a sleep coach, Teresa explains:
* what a sleep coach does and how they can help people struggling to get quality sleep;
* how a sleep coach can help someone with sleep apnea navigate different options;
* Teresa's background working for an oral appliance manufacturer;
* mouthguards and other devices people buy randomly online and think they are treating their sleep apnea but they're NOT!
Connect with Teresa on Instagram: @sleepbetternyc
www.sleepbetter.nyc
Connect with Emma on Instagram: @sleepapneastories
www.sleepapneastories.com
If you missed Emma's presentation on the Project Sleep Facebook page, here's the link:
https://fb.watch/8BAphsvLDN/
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
41 min
October 06, 2021 39 - Patrick Zwally - Double Jaw Surgery
Trigger warning: there is some discussion of suicidal thoughts in this episode.
Patrick Zwally shares his health journey from debilitating chronic pain to life-saving double jaw surgery and jaw joint replacement. Together Patrick and Emma discuss:
* Patrick's childhood including his mouth breathing and poor oral posture;
* The traditional orthodontics Patrick had as a teen;
* The beginning of TMJ problems, 2 shoulder surgeries and neck pain;
* Patrick developing chronic pain and feeling suicidal;
* Lots of people are having serious sleep problems but don't meet the official criteria for a sleep apnea diagnosis;
* Patrick discovering the work of Professor John Mew and Dr Mike Mew;
* Meeting with Dr Bill Hang and Dr Reza Movahed;
* Double jaw surgery and jaw joint replacement and Patrick's amazing results;
* Myofunctional Therapy to improve oral posture.
Sarah Hornsby talking about exercises she does with Kourtney Kardashian https://youtu.be/qgUPm4Y5azk
The book Patrick mentioned - Jaws: the story of a hidden epidemic
Follow the podcast on Instagram: @sleepapneastories
Emma's Facebook Live on the Project Sleep page October 10th at 8pm EST - click here
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
57 min
September 29, 2021 38 - Chris Kelly - AER Healthcare, Improving Diagnosis and Treatment for Sleep Apnea
Emma is joined by Chris Kelly from AER Healthcare in Australia. He explains their approach to diagnosis and treatment of Sleep Apnea and how it disrupts the status quo where patients do a lot of the legwork. Together they discuss:
* How Chris started as a dental prosthetist and how he started designing and manufacturing oral appliances for sleep apnea and snoring;
* Common problems for patients navigating the current medical system involving referrals to sleep specialists from GPs;
* How Chris developed AER Healthcare to give a pathway to people with Sleep Apnea to easily get screened and have a sleep study at home;
* Chris explains the four types of sleep studies, how they differ and which can be relied upon to rule in/out Sleep Apnea;
* Working with Sleep Specialists to interpret results of home sleep studies and make recommendations and provide prescriptions for the Dentist to explain all the treatment options;
* Why they offer a one month CPAP trial.
Connect with Chris at https://linkedin.com/in/christopherkellyaerhealthcare/
AER Healthcare's website has a video explaining their model: https://www.aerhealthcare.com.au/
The surgical procedure Chris mentioned is called a 'Transpalatal Advancement Pharyngoplasty for Obstructive Sleep Apnea Syndrome'
Chris mentioned Jason from the Lanky Lefty YouTube channel. You can find it here: https://www.youtube.com/c/Freecpapadvice
Follow the podcast on Instagram: @sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
1 hr 9 min
September 22, 2021 37 - Dr David McIntosh - "Snored to Death"
Emma is joined by Dr David McIntosh, an adjunct Associate Professor of ENT Surgery in Queensland, Australia. He specializes in pediatric ENT surgery, nose & sinus disease and snoring & sleep apnea. Together they discuss:
* Dr McIntosh explains the urgency of intervention with children showing signs of sleep disordered breathing;
* Children with mouth breathing or snoring should be taken for evaluation to a pediatric ENT as quickly as possible;
* Consequences of untreated sleep disordered breathing in kids include: behavioral problems, hearing problems, listening problems, memory problems and many other issues;
* David explains why he fully supports proponents of nasal breathing but also explains that he thinks it's important to get to the root cause of the mouth breathing and take corrective action.
* The difference between management and treatment and where ENTs can perform surgery to treat the underlying airway obstruction.
Follow Dr McIntosh on Instagram: @dr_david_mcintosh_ent
https://entspecialists.com.au/our-team/dr-david-mcintosh/
Buy a copy of Dr McIntosh's book here or simply search "Snored to Death" on Amazon.
Emma's note: the information in this book is critical to the well being of children all over the world. If you have means, please buy an extra copy and gift to a Pediatrician or GP you know.
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
57 min
September 15, 2021 36 - Dr Jenny Talbert - Sleep Apnea and Health at Every Size
Emma is joined by Dr Jenny Talbert, a Doctor of Chiropractic practicing in Portland, Oregon. Together they discuss:
* The experience of diagnosis and beginning treatment with a CPAP;
* Jenny's mom's diagnosis with Sleep Apnea after a scary episode of Afib;
* The "Health at Every Size" philosophy Dr Talbert brings to her Chiropractic office;
* Jenny's hope to continue advocacy for sleep apnea testing and diagnosis with fellow chiropractors as well as helping patients get the referrals they need.
Some resources discussed in the episode:
Dr Vik Veer’s YouTube video https://www.youtube.com/watch?v=rdR8SVCeSJg
BMI Episode of Maintenance Phase Podcast
http://maintenancephase.com/
Books:
Body Respect by Dr. Lindo Bacon
Fearing the Black Body: The Racial Origins of Fat Phobia by Dr. Sabrina Strings
Email: [email protected]
Follow Dr Talbert on Instagram: www.instagram.com/chirojenny
Follow the show on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
1 hr 3 min
September 08, 2021 35 - Dr David Shirazi - TMJ Disorder and Sleep Apnea
Emma is joined by Dr David Shirazi, a Dentist who is also an Acupuncturist and even trained as a Sleep Tech. Together they discuss:
* TMJ problems, what causes them and how they often relate to sleep apnea;
* Why traditional mouth guards for clenching and grinding can make sleep apnea worse and which devices Dr Shirazi uses instead;
* Using acupuncture to treat TMJ problems and facial pain;
* Dr Shirazi explains what the ALF orthodontic appliance is and how he uses it with his patients;
* Traditional orthodontics and the disappointing rate of change;
* An interesting story about the way some Scandinavian countries decided to include mandibular advancement devices as a treatment for sleep apnea covered under public health insurance;
Dr Shirazi's website: https://tmjandsleeptherapycentre.com/
TMJ Centres around the world: https://tmjtherapycentre.com/centre-directory-geo-location/
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
57 min
September 01, 2021 34 - Fabienne Deprez - A Professional Athlete with Sleep Apnea
Emma is joined by Fabienne Deprez, a former professional badminton player who competed for the German national women's team. Together they discuss:
* Fabienne's feeling tired and unable to bounce back after training sessions;
* Her journey to diagnosis with sleep tests;
* 5 months using a CPAP but finding it difficult;
* Being fitted for a mandibular advancement device and finding it more comfortable to wear than a CPAP;
* Pregnancy and tiredness;
* Fabienne's decision to talk about her diagnosis with Sleep Apnea to use her platform to raise awareness.
Follow the podcast on Instagram: www.instagram.com/sleepapneastories
Follow Fabienne on Instagram: www.instagram.com/fabiennedeprez
Emma mentioned Jason from the Lanky Lefty YouTube channel. You can find it here: https://www.youtube.com/c/Freecpapadvice
Here is Jason's Amazon store with links to the Mask Bright CPAP cleaner and the hurricane CPAP equipment dryer: https://www.amazon.com/shop/thelankylefty27
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
34 min
August 25, 2021 33 - Dr Dayna Johnson - Sleep Apnea and Racism
Emma is joined by Dr Dayna Johnson. Dr. Dayna Johnson, PhD, MPH, MSW, MS is a sleep epidemiologist and Assistant Professor in the Department of Epidemiology at the Rollins School of Public Health, Emory University in Atlanta GA. Dr Johnson explains:
* some reasons why communities of color have higher rates of sleep apnea but lower screening for the condition.
* unconscious and conscious biases playing into doctor visits and who gets referred to a sleep center.
* the need to promote awareness of symptoms of sleep apnea, especially in black communities.
* access to sleep doctors and transportation.
* how air pollution disproportionately affects black people and how that contributes to sleep apnea.
* safety concerns in lower income neighborhoods and how those can affect whether people are able to follow sleep hygiene advice.
* covid-19 and the impact on the black community's access to healthcare.
Follow Dr Johnson on Twitter: https://twitter.com/DrDaynaAJohnson
Follow the show on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
50 min
August 18, 2021 32 - Graham Stoney - Sleep Apnea and Chronic Fatigue Syndrome
Emma is joined by Graham Stoney, a former biomedical engineer from Sydney, Australia. Together they discuss:
* Graham's depression and exhaustion, which led to him leaving his job and a diagnosis with Chronic Fatigue Syndrome,
* Bringing training as a biomedical engineer to try to figure out the root cause of his sleep apnea,
* Trials of CPAP and a mandibular advancement device,
* Graham on going to multiple different specialists: sleep specialist, ENTs, surgeons, trying to get to the root cause of his sleep apnea,
* Exploring MMA surgery and palate expansion and beginning treatment with an mRNA appliance,
* Graham talks about Jordan Peterson and his diagnosis with obstructive sleep apnea.
Graham's blog is here: https://cfs-survivors.org/
Follow Graham on Instagram: www.instagram.com/grahamstoney
Follow the show on Instagram: www.instagram.com/sleepapneastories
This episode is sponsored by:
Mute Nasal Dilators www.mutesnoring.com
eXciteOSA www.exciteosa.com
and Betterhelp www.betterhelp.com/emma
Disclaimer: this episode of the podcast includes people with sleep apnea discussing their own experiences of medical procedures and devices. This is for information purposes only and you should consult with your own medical professionals before you start or stop any medication or treatment.
1 hr 24 min

About Sleep Apnea Stories

From the publisher's feed

Sleep Apnea Stories is a podcast featuring guests who are coping with sleep apnea and the medical experts who treat them. The goal of the podcast is to shatter stereotypes around sleep apnea. We also want to build a community of people coping with Sleep Apnea to provide inspiration and hope to listeners. Do you have Sleep Apnea? Would you be willing to share your story with our community? If so, I'd love to hear from you! Email: [email protected]