Sleep Apnea Stories

Sleep Apnea Stories

By Emma CookseyHealth & Fitness
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Sleep Apnea Stories episodes

  • 23 - Alida Abdullah - High Blood Pressure and Sleep Apnea
    Emma is joined by Alida Abdullah and they discuss:
    *Growing up snoring and sleeping during school;
    *Difficulty with CPAP therapy as a mother juggling a newborn and a 3 year old;
    *Being a college athlete and not fitting the Homer Simpson stereotype of the older, overweight men who suffer with Sleep Apnea;
    *Treatment of African American women in the healthcare system, what needs to change;
    *The link between Hypertension and Sleep Apnea.
    Connect with Alida on Instagram: @aa2ff2020
    Follow Emma on Instagram: @sleepapneastories
    If you want to read further about the health disparities due to race in the US, there are some great resources put together by Dr Akilah Cadet https://www.changecadet.com/resources and also this article by Dr Cadet: https://www.healthline.com/health/black-health-matters-putting-the-care-back-in-healthcare#3
    The podcast Emma mentioned in the intro: https://www.richroll.com/podcast/matthew-walker-600/
    41 min
  • 22 - Julie Flygare - Narcolepsy and Sleep Disorders Advocacy
    Emma is joined on the podcast by Julie Flygare, President and CEO of Project Sleep.  Julie has suffered with Narcolepsy with Cataplexy and is an accomplished sleep disorders advocate.  Emma and Julie discuss:
    *Symptoms and early warning signs of Narcolepsy;
    *Julie's journey through diagnosis and treatment;
    *How sleep studies for Narcolepsy differ from those for Sleep Apnea;
    *The need for more awareness around Sleep Disorders and more money for Sleep Disorders Research;
    *How listeners can get involved in supporting Project Sleep.
    You can find all the information about Project Sleep, including social media handles on the website: https://project-sleep.com/
    Julie's book "Wide Awake and Dreaming: A Memoir of Narcolepsy" is available now.  Find all the details of where to buy it here
    You can follow Emma on Instagram @sleepapneastories
    Sign up for email updates about the podcast and get a free printable pdf called "CPAP Lessons I Learned the Hard Way" here
    48 min
  • 21 - Randy Thornton - Sleep Apnea in Professional Football and Wrestling
    Emma is joined by Randy Thornton, a former NFL player and professional wrestler. Randy discusses:
    *How he struggled with intense headaches and mood swings before he was diagnosed with Sleep Apnea;
    *Reluctance of many men to go to the doctor;
    *Just how widespread Sleep Apnea is among athletes who focus on building muscles of the neck and shoulders;
    *Spreading awareness in the African American community about the dangers of Sleep Apnea;
    *The new "Best Sleep" magazine and it's goal to raise awareness of Sleep Disorders like Sleep Apnea.
    Info about "Best Sleep" magazine:  https://vimeo.com/509104771
    Follow Randy on Instagram: @randythornton20
    Follow Emma on Instagram: @sleepapneastories
    Sign up for email and get your free 2 page pdf printable "CPAP Lessons I learned the hard way" here
    48 min
  • 20 - Dr Madan Kandula - Sleep And Sinus Surgeries for Sleep Apnea with an ENT
    Emma is joined by Dr Madan Kandula, a Board Certified Otolaryngologist, specializing in sleep and sinus surgery.  He leads Advent, an ENT group with 10 clinics across Wisconsin and Illinois.  In this episode we cover:
    *The current state of the healthcare system and how patients are not being served by it;
    *Dr Kandula's vision for a more patient-centered approach and offering multiple treatment options for Sleep Apnea;
    *Minimally invasive in-office procedures on sinuses and turbinates to help relieve nasal congestion and improve sleep at night;
    *Madan's own journey with breaking his nose twice and how that shaped his interest in the ENT field.
    Connect with Dr Kandula on Instagram: @adventknows
    https://adventknows.com/  this website has a number of videos about the procedures Emma and Dr Kandula discussed in this episode.
    Connect with Emma on Instagram: @sleepapneastories 
    Download your FREE 2 page printable pdf on "CPAP lessons I learned the hard way" here
    If you have interest in the course Emma is developing to help you adjust to your CPAP, please email [email protected] and put "CPAP course" in the subject of the email.
    46 min
  • 19 - Dr Meghna Dassani - Children and Sleep Apnea
    Emma is joined by Dr Meghna Dassani, a Dentist in Houston, Texas.  In this episode we discussed:
    *Dr Dassani's new book "Airway is Life: Waking up to your family's sleep crisis" and her podcast Healthy Sleep Revolution
    * What are the red flags parents should look for in their kids to spot sleep disordered breathing?
    * Which specialists should be consulted and in what order?  
    *When is it appropriate to send a child for a sleep study?  Are CPAPs an option for children with Sleep Apnea?
    * Palate expansion in kids and the impact on their airway development.  How early can you start?
    Connect with Dr Dassani: www.MeghnaDassani.com
    www.DassaniDentistry.com
    IG: @healthysleeprevolution
    FB: @drdassani
    Connect with Emma on Instagram: @sleepapneastories
    **Get your FREE 2 page printable pdf on "CPAP Lessons I Learned the Hard Way" here**
    34 min
  • 18 - Craig Baker - Sleep Apnea Symptoms: Anxiety
    Emma is joined by Craig Baker, a Personal Trainer from Sydney, Australia. Together they discuss: 
    *Craig discusses his Sleep Apnea symptoms, including anxiety and exhaustion;
    *Deciding to cut back on decathlon training in his 20s;
    *Using a phone app to record snoring and breathing sounds during sleep;
    *Emma's experience with her Tonsilectomy and Craig's upcoming surgery;
    *CPAP and Craig's experience with Nasal Pillows;
    *Are people overweight and then develop Sleep Apnea or do they develop Sleep Apnea and get overweight as a result?
    Connect with Craig: @craigbakerpt and https://www.craigbakerpt.com/
    Get Emma's "CPAP Lessons I Learned the hard way" printable pdf here
    42 min
  • 17 - Dr Earl Bogrow - CPAP alternative: Mandibular Advancement Devices
    Emma is joined by Dr Earl Bogrow, a Dentist who specializes in Mandibular Advancement Devices, also called Oral Appliances, to treat Sleep Apnea.  During the episode Emma and Earl discuss:
    *Some of the benefits to Mandibular Advancement devices vs CPAP;
    *Dr Bogrow's own journey with Sleep Apnea;
    *How to find a great Dentist to make you an oral appliance.
    *TMJ issues and how they need to be taken into account when customizing a Mandibular Advancement Device; 
    *Breathing and airways - James Nestor's book "Breath";
    *Dr Bogrow's didgeridoo playing and how circular breathing can tone the muscles of the throat.
    Contact Dr Bogrow: https://michigansleepapneacenter.com/
    Search for a Dentist accredited with the American Academy of Dental Sleep Medicine - click here
    Donate to the Project Sleep fundraising "Sleep In" here
    1 hr 1 min
  • 16 - Stacy Erickson Edwards - Sleep Apnea and Idiopathic Hypersomnia
    Emma is joined by Stacy Erickson Edwards, a Sleep Disorders Advocate and blogger at www.cpapbabes.com.  Stacy discusses:
    *her journey to getting diagnosed with Sleep Apnea;
    *dealing with continued sleepiness even after CPAP treatment and exploring other potential sleep disorders;
    *being diagnosed with Idiopathic Hypersomnia after an MSLT test;
    *working with Project Sleep to raise awareness about sleep disorders.
    *taking part in Project Sleep's "Sleep In" fundraiser 12th-14th March;
    Connect with Stacy: http://www.cpapbabes.com/
    Instagram: @cpapbabes
    Connect with Emma: https://www.sleepapneastories.com/
    Instagram: @sleepapneastories
    Emma and Stacy are both taking part in Project Sleep's "Sleep In" Fundraiser, more details here.  
    You can sponsor Emma here
    Emma mentioned Stacy's article on not feeling better on CPAP - read it here
    41 min
  • 15 - Ryan King - Exercise and Sleep Apnea
    Emma talks all about physical fitness and coping with Sleep Apnea.  Emma's guest, Ryan King, is a personal trainer who has been working with Gary Knight (friend of the show, guest on episode 4).  Emma and Ryan discuss:
    * How to gradually build up the amount of exercise you're doing even when you're tired;
    * Alternatives to working out at the gym;
    *The importance of mindset and breathing;
    *Unrealistic ideals of beauty.
    Connect with Ryan on Instagram: @rkfitness_fevo
    "Sleep In" Fundraiser run by Project Sleep, 12th-14th March 2021 
    **I'd LOVE to have you on my team to spread awareness of Sleep Apnea!!!**
    Sign up to join the fundraiser (click "Join Our Team button) or donate: click here
    Or to learn more about Project Sleep, visit their website: https://project-sleep.com/ or follow them on Instagram: @project_sleep
    Connect with Emma: Instagram - @sleepapneastories
    www.sleepapneastories.com
    46 min
  • 14 - Sydney Avis & Dr Victor Avis - MMA Surgery
    Emma is joined by Sydney Avis and her Dad, Dr Victor Avis.  Sydney recently underwent an MMA surgery (Maxillary Mandibular Advancement) to expand her airway and improve her sleep and breathing.  In this episode we discuss:
    *various diagnoses Sydney received including Narcolepsy and Sleep Apnea and why Dr Avis didn't feel these told the whole story of Sydney's airway challenges
    *treatments Sydney tried before opting for the MMA surgery, including a Mandibular Advancement Device and a CPAP.  
    *diagnostic tests Sydney underwent, including the DISE procedure and sleep studies
    *MMA surgery and recovery from it
    *the non-profit "O2 Breathe" the father/daughter duo began and the Documentary film "Airway" they have been working on for four years.
    Airway Documentary: https://www.airwaydocumentary.com/
    O2 Breathe: https://www.o2-breathe.org/
    Connect with Sydney and Victor: @sydneyavis @dr.victoravis
    54 min

About Sleep Apnea Stories

From the publisher's feed

Sleep Apnea Stories is a podcast featuring guests who are coping with sleep apnea and the medical experts who treat them. The goal of the podcast is to shatter stereotypes around sleep apnea. We also want to build a community of people coping with Sleep Apnea to provide inspiration and hope to listeners. Do you have Sleep Apnea? Would you be willing to share your story with our community? If so, I'd love to hear from you! Email: [email protected]

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