In this episode, two parent-advocates - each with a child diagnosed with Autism Spectrum Disorder (ASD) - share how ASD shapes communication, safety, and trust, and why lived experience should guide training for police, firefighters, EMTs, and courts. Together with Cheryl Stehle and Jamiel Owens, we explore misread behaviors, practical de-escalation, family preparation, and the need for policy that reduces harm.
When neurodivergent people interact with first responders a single misunderstanding can turn a routine interaction into a crisis. We sit down with two parents whose lived experience with ASD reshaped how they see safety, communication, and trust—and how first responders can, too. Their personal stories and experiences move from early fear about ASD and confusing diagnoses to purposeful advocacy that prioritizes dignity and practical skills.
We unpack what ASD really means in day-to-day life—why one person’s eye contact challenges or stimming are not defiance, and how processing time, clear language, or a written prompt can lower the temperature fast. Jamiel shares how fatherhood and his role at the Center for Autism Research inform an approach that treats difference as a lens, not a deficit. Cheryl explains how AUTT training equips police, firefighters, EMTs, and juvenile probation with field-ready habits: pause to observe, ask neutral questions about communication needs, and look for tools like blue envelopes, ID cards, or a support contact. The message is simple and actionable: just ask, then adjust.
We also talk about preparation within the family especially when domestic violence is present. An autism go-bag with headphones, comfort items, and a communication device can restore predictability during stressful moves or shelter entry. We discuss emergency preparedness practices for people living with ASD such as visiting police stations, seeing emergency response gear up close, and rehearsing traffic-stop steps that can prevent sensory shock and build confidence. Finally, we push for systems change: mandate recurring, lived-experience-led autism training across public safety platforms; create policy that normalizes optional license notations and standardized info kits; and fund community-curated resource hubs that actually meet families where they are.
If this conversation resonates, share it with a caregiver, a first responder, or a policymaker who can put it to work.