Have you ever heard of a certified senior advisor? Would you even know what you needed or how to find one? You're not alone if the answer is no — and there are clear steps you can take to get the right help at the right time.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how overwhelming it can be to recognize when something has changed and know where to turn next. We're sharing insights from Cynthia Perthuis, principal owner of Senior Care Authority in Southwest Florida and a certified senior advisor, about finding, evaluating, and implementing solutions along the caregiving journey.

If you're following along with the Navigating Dementia Caregiving Roadmap, this aligns with Step Eight. You can find the roadmap as a downloadable digital guide on the guides page of our website, and we've also created it as an interactive page where you can click directly into each step.

Let's explore three essential tips for navigating this process — from recognizing when something is wrong, to finding the right help, to building a strategy that works for your whole family.

Connect with us and share your tips:

• Website: https://thecaregiversjourney.org/
• Donate: https://give.cornerstone.cc/thecaregiversjourney
• Instagram: https://www.instagram.com/thecaregiversjourney/
• Facebook: https://www.facebook.com/thecaregiversjourneys/
• Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
• Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

• Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney
• Society of Senior Care Advisors:  https://www.csa.us/
• Cynthia Perthuis: https://www.seniorcare-nyfl.com/eldercare-consultants-in-new-york-city-and-southwest-florida.html#about
• The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.

Takeaways

We shared 3 tips:

Tip 1: Evaluate your situation

Tip 2: Reach out for help

Tip 3: Create a strategy

Read More in This Blog

https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias-2/

“Support groups are like lifelines — we’re around other people who are going through the same thing we are, and we know we’re not alone.” Kim Franklin

Do you wonder if support groups are right for you? Do you know how to find one that fits your needs? Are you feeling overwhelmed and isolated in your caregiving role?

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that support groups can be transformative resources on this journey. In this post, we’re sharing insights from Kim Franklin, Senior Program Manager with the Alzheimer’s Association, about how to find the right support group for you.

Support groups offer more than just information — they provide therapeutic spaces where caregivers can come together, share their frustrations, breathe, and hear from others in similar situations. Yet many caregivers resist joining groups, thinking they don’t have time, don’t need help, or feel caregiving is a private family matter that should be handled alone.

If you’re following along with the Navigating Dementia Caregiving Roadmap, this post supports Step Four, Find a support group. Let’s explore four essential tips for finding the right support group for your caregiving journey.

Connect with us and share your tips:

• Website: https://thecaregiversjourney.org/
• Donate: https://give.cornerstone.cc/thecaregiversjourney
• Instagram: https://www.instagram.com/thecaregiversjourney/
• Facebook: https://www.facebook.com/thecaregiversjourneys/
• Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
• Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/57-find-the-right-support-group-four-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

• Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney
• Alzheimer’s Association 24/7 Helpline: 800–272–3900. Masters-level counselors can help with crisis intervention, finding resources including support groups, and they offer interpretation in over 200 languages.
• Community Resource Finder: https://www.communityresourcefinder.org/ Visit the Alzheimer’s Association website and enter your zip code to find support groups and other services in your community.
• The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.

Takeaways

We shared 4 tips:

1. Start with what you need right now
2. Choose the best format for you
3. Explore groups that match your situation
4. Don't settle, but don’t give up either

Take Action: Support Groups as Self-Care

If you haven’t yet tried a support group, consider committing this month to looking for one. Keep in mind that attending a support group isn’t just about learning how to care for your loved one — it’s also a form of self-care. You’re taking care of yourself while learning valuable information and building connections with others who understand.

Resources to Get Started:

• Alzheimer’s Association 24/7 Helpline: 800–272–3900. Masters-level counselors can help with crisis intervention, finding resources including support groups, and they offer interpretation in over 200 languages.
• Community Resource Finder: Visit the Alzheimer’s Association website and enter your zip code to find support groups and other services in your community.
• The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.

"One of the hardest parts in spousal caregiving is accepting that we're no longer just partners. We're now caregiver and care receiver. The loss of our emotional and physical partner and the emotional responsibilities we're taking on can really take an enormous toll."

Are you struggling to find balance between being a spouse and being a caregiver? Do you find yourself wondering when the shift happened—when your partner became your patient? Have you noticed yourself "forgetting to be a spouse" because you're so focused on getting the caregiving right?

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've experienced firsthand the complex role transition that happens when your spouse becomes your care receiver. This journey isn't a sudden switch that flips on diagnosis day—it's a slow, gradual transition that unfolds over years.

There's a moment when you realize your relationship has fundamentally changed. Your spouse, your partner, your companion—they're still there. But the person you used to bounce ideas off of can't be that person for you anymore. This transition brings unique challenges, from managing new responsibilities to redefining intimacy to letting go of promises made years ago.

Let's explore four essential tips for navigating the changing role from spouse to caregiver while preserving your relationship and your own wellbeing.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/

Donate: https://give.cornerstone.cc/thecaregiversjourney

Instagram: https://www.instagram.com/thecaregiversjourney/

Facebook: https://www.facebook.com/thecaregiversjourneys/

Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/

Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/56-when-your-spouse-becomes-your-patient-alzheimers-and-other-dementias/

Additional Resources Mentioned

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

We shared 4 tips:

1. Find the balance in your changing role

2. Give yourself permission to get help

3. Keep connection while intimacy is redefined

4. Give yourself permission to let go of promises you made years ago.

Read More in This Blog

https://sueryansolutions.medium.com/the-changing-role-navigating-the-transition-from-spouse-to-caregiver-90acd5fde819?postPublishedType=repub

“What really helps is grounding yourself in three things: what change you’re noticing, how different it is from who this person has always been, and whether it’s getting worse over time.” — Dr. Anna Chodos

Are you concerned that your loved one is showing early signs of dementia? Do you find yourself noticing changes but unsure whether they’re significant? You’re not alone in this uncertainty, and there are clear steps you can take to address your concerns.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how challenging it can be to recognize early signs of dementia and know what to do next. We’re sharing insights about practical guidance for managing through those early signs of dementia from Dr. Anna Chodos, professor of medicine in geriatrics at the University of California, San Francisco, and executive director of Dementia Care Aware, and Dr. Barry Jacobs, clinical psychologist, family therapist, and co-author of the AARP Caregiver Answer Book.

Let’s explore three essential tips for recognizing early dementia signs — starting difficult conversations with your loved one and communicating effectively with healthcare providers.

Connect with us and share your tips:

• Website: https://thecaregiversjourney.org/
• Donate: https://give.cornerstone.cc/thecaregiversjourney
• Instagram: https://www.instagram.com/thecaregiversjourney/
• Facebook: https://www.facebook.com/thecaregiversjourneys/
• Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
• Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/55-is-it-an-early-sign-of-dementia-three-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

• Alzheimer’s Association 10 signs of dementia: https://www.alz.org/alzheimers-dementia/10_signs
• Dementia Care Aware: https://www.dementiacareaware.org/
• Barry’s website www.caregiveranswerbook.com
• Buy the Caregiver Answer Book on Amazon https://amzn.to/4i9V9ZL
• Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: Know What Signs to Look For — They’re More Than Just Memory

Tip 2: Start Early and Normalize Health Conversations

Tip 3: Plan Ahead for the Doctor’s Appointment

Read More in This Blog

https://sueryansolutions.medium.com/55-is-it-an-early-sign-of-dementia-three-essential-tips-alzheimers-and-other-dementias-5a1278aa1c2f

“An accurate early dementia diagnosis is essential. It can make a significant difference in how families navigate the diagnosis.” Esther Kane, MSN, RN

Your loved one has been diagnosed with dementia… but do you ever wonder if they’ve been diagnosed with the correct type? Do you find yourself thinking: “This diagnosis doesn’t quite fit what I’m seeing.” You’re not alone. Getting the correct diagnosis opens the right doors to support, care, and community that you might not have known existed.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned firsthand that not all dementias are the same. Understanding the specific type of dementia your loved one has ensures they’re receiving the correct medical care and helps you connect with the education, targeted support groups, and research opportunities tailored to your loved one’s specific needs.

In this post, we’re sharing insights from Esther Kane, a registered nurse and the Director of Support and Education for the Association for Frontotemporal Degeneration (AFTD). As a director of nursing in multiple memory care facilities, Esther’s entire career has been supporting and caring for individuals living with all types of dementia. In her role at AFTD, Esther works to advance early, accurate FTD diagnoses in order to improve the quality of life for those impacted by the disease.

We’re exploring five essential tips for ensuring your loved one receives the correct dementia diagnosis and how to leverage this knowledge for better care.

Full Show Notes

https://thecaregiversjourney.org/54-why-the-right-dementia-diagnosis-matters-five-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

• Alzheimer’s Association 10 signs of dementia: https://www.alz.org/alzheimers-dementia/10_signs
• Navigating Dementia Caregiving Roadmap guide: https://thecaregiversjourney.org/guides/
• Association for Frontotemporal Dementia (AFTD): https://www.theaftd.org/
• Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: Learn More About Dementia and Push to Dig Deeper

Tip 2: Find Your Specific Diagnosis Community, Resources, and Support

Tip 3: Monitor Disease Progression and Prepare

Tip 4: Investigate Clinical Trials

Tip 5: Understand the Genetic Risk Associated with This Diagnosis

Read More in This Blog https://sueryansolutions.medium.com/53-why-the-right-dementia-diagnosis-matters-five-essential-tips-alzheimers-and-other-dementias-b6afe1179898?postPublishedType=repub

"Dementia is not just a medical journey, but it's a financial and emotional one." – Devon Banning, CFP

Are you avoiding the financial conversation with your loved one because it feels uncomfortable or overwhelming? Do you find yourself wondering how you'll afford care as your loved one's needs increase?

Are you concerned about making the right financial decisions during this challenging time?

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we know that money is often the last conversation we want to have, but it's inevitable. We have to have it.

Today, we're sharing five essential tips for navigating the financial aspects of dementia caregiving with Devon Banning, a Certified Financial Planner with Moran Wealth Management. Devon has more than 15 years of experience across a range of roles in the financial industry, and he brings invaluable depth of experience with dementia family caregiving. He's spent the majority of his career managing financial lives for individuals and families, many of whom were suddenly thrust into the caregiving role due to dementia.

Here's what makes this conversation easier: it'll be much more manageable when we respect our loved ones' dignity, independence, and their wishes throughout all of our conversations. Today is about helping you learn options for taking your next step—options that are going to make you feel more confident without needing to have all the answers at one time.

This episode supports step three of our Navigating Dementia Caregiving Roadmap Guide: understand the financial situation. If you've been putting this conversation off, you're definitely not alone. This is an area many caregivers hesitate to step into. It's deeply personal, and it can feel intimidating—especially if we wish we'd addressed it sooner.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/

Donate: https://give.cornerstone.cc/thecaregiversjourney

Instagram: https://www.instagram.com/thecaregiversjourney/

Facebook: https://www.facebook.com/thecaregiversjourneys/

Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/

Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/53-the-dementia-care-financial-conversation-five-essential-tips-alzheimers-and-other-dementias-2/

Additional Resources Mentioned

Moran Wealth Management https://moranwm.com/

Disclaimer:This podcast is for educational and informational purposes only and does not constitute investment, legal, or tax advice. The views expressed are those of the participants as of the date recorded and may change without notice. Nothing discussed should be considered a recommendation or solicitation to buy or sell any security or to engage in any particular investment strategy. Listeners should consult their own financial, legal, or tax professionals before making any financial decisions. Moran Wealth Management is an SEC-registered investment adviser. Registration does not imply a certain level of skill or training.

Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Get the Financial Conversation Started

Use these 8 steps to guide the conversation

Understand the different stages of financial considerations

Understand The Financial Position of Your Loved One

Consider Leveraging a Financial Planning Expert

Read More in This Blog

https://medium.com/@sueryansolutions/financial-planning-for-dementia-caregiving-five-essential-tips-edf00b98be82

Are you prepared if a major storm threatens your area? Do you know whether to evacuate or shelter in place with your loved one who has dementia? Have you created a communication plan that accounts for potential power outages and cell tower failures?

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how storm season brings critical decisions that require advance planning. Whether your loved one lives at home or in a care community, preparing for storms demands special considerations for people living with dementia.

Recently, we spoke with Celeste Lynch, Executive Director at Moorings Park Grand Lake in Naples, Florida. With nearly 40 years of experience in senior living leadership, emergency planning, and resident safety, Celeste shared invaluable insights on storm preparedness from both the care community and at-home perspectives.

If you're following along with the Navigating Dementia Caregiving Roadmap Guide, today's topic aligns with Step 14: Create a Care Plan and Family Emergency Plan.

Let's explore four essential tips for weathering storms safely with your loved one who has dementia.

Connect with us and share your tips:

• Website: https://thecaregiversjourney.org/
• Donate: https://give.cornerstone.cc/thecaregiversjourney
• Instagram: https://www.instagram.com/thecaregiversjourney/
• Facebook: https://www.facebook.com/thecaregiversjourneys/
• Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
• Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/52-preparing-for-stormy-weather-four-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

• Navigating Dementia Caregiving Roadmap guide: https://thecaregiversjourney.org/guides/
• Moorings Park community: https://www.mooringspark.org/ 
• FEMA assistance programs: https://www.fema.gov/
• DisasterAssistance.gov: https://www.disasterassistance.gov/
• Relief organizations such as the Red Cross: https://www.redcross.org/
• Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

We shared 4 tips:

1. Preparing Ahead of Time 
2. Decide whether you will shelter in place or evacuate
3. Strengthen Your Communication Plan Before, During, and After the Storm 
4. Post storm, safely get them back in their routine

Read More in This Blog here

"The difference between TV as comfort and TV as chaos isn't the screen—it's understanding how the changing brain experiences what's on it."

Do you rely on television to help occupy your loved one's time? Does your care receiver seem agitated or anxious when the TV is on? Have you noticed them leaving the room when a show is playing or struggling to follow programs they once enjoyed?

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that what soothes us as caregivers can actually cause distress for people living with dementia. In this episode, we spoke with Allyson Schrier, co-founder and president of Zinnia TV and former caregiver for her husband with frontotemporal dementia, about why regular TV can be problematic and what we can do about it.

Let's explore four essential tips for managing TV time effectively.

Connect with us and share your tips:

• Website: https://thecaregiversjourney.org/
• Donate: https://give.cornerstone.cc/thecaregiversjourney
• Instagram: https://www.instagram.com/thecaregiversjourney/
• Facebook: https://www.facebook.com/thecaregiversjourneys/
• Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
• Email: [email protected], [email protected]

Full Show Notes

Additional Resources Mentioned

• Zinnia TV https://www.zinniatv.com
• Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Tip 1: Be Thoughtful About What’s On TV

The answer isn’t to take TV away completely. We need to be thoughtful about what we put on the TV and pay close attention to how our loved ones respond.

Tip 2: Target Something That Creates Curiosity Without Agitation

The goal is to find programming that engages without overstimulating or causing your loved one to fall asleep (because daytime sleeping can lead to nighttime wakefulness).

Tip 3: Leverage Simulated Presence Therapy

The innovative approach of simulated presence therapy takes advantage of how people with dementia can experience confusion between what’s on screen and what’s actually happening — and uses it to benefit them.

What is simulated presence therapy? Research has shown that when someone will only take medication or follow instructions from a specific person (like a daughter or doctor), showing them a video of that person giving the instruction can work just as effectively as having the person physically present.

Tip 4: Create Engaging Alternatives On Your Own

Beyond television, there are creative ways to provide visual engagement that work better with how the dementia brain processes information.

Observe and Adjust

Managing the television experience for someone with dementia isn’t about finding one perfect solution. What works today may not work next month as the disease progresses, and that’s reasonable. The process is about observing how your loved one responds and adjusting accordingly.

The key is understanding the changing brain experiences television very differently than we do. Through being thoughtful about what’s on the screen, targeting content that engages without overwhelming, leveraging simulated presence therapy, and creating our own alternatives, we can turn TV time from a potential source of agitation into a positive opportunity for comfort and connection.

Read More in This Blog here

Are you struggling to pull your family together to create a working support system for someone living with dementia? Do you find family members disagreeing on what needs to be done or how to help? You're not alone, and there's a path forward.

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that transforming family dynamics into effective teamwork is one of the most challenging—yet most rewarding—aspects of the caregiving journey.

In this episode, we spoke with Dr. Barry Jacobs, a clinical psychologist and family therapist who brings both professional expertise and personal caregiving experience to this conversation. Barry cared for his mother with vascular dementia and his stepfather with Alzheimer's disease for seven years, and he co-authored the AARP Caregiver Answer Book with his wife, psychologist Julia Mayer.

This content aligns with Step 8 of our Navigating Dementia Caregiving Roadmap: Start Planning for the Next Stage of Care, particularly when building your personal support network of family and friends.

Connect with us and share your tips:

• Website: https://thecaregiversjourney.org/
• Donate: https://give.cornerstone.cc/thecaregiversjourney
• Instagram: https://www.instagram.com/thecaregiversjourney/
• Facebook: https://www.facebook.com/thecaregiversjourneys/
• Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/
• Email: [email protected], [email protected]

Full Show Notes

https://thecaregiversjourney.org/50-family-dynamics-in-caregiving-four-essential-tips-alzheimers-and-other-dementias/

Additional Resources Mentioned

• Barry’s website www.caregiveranswerbook.com
• Buy the Caregiver Answer Book on Amazon https://amzn.to/4i9V9ZL
• Navigating Dementia Caregiving Roadmap guide https://thecaregiversjourney.org/guides/#guides
• Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

Takeaways

Transforming your family into an effective caregiving team isn’t easy. It’s worth the effort — not just for your loved one with dementia — but for every member of your family.

These four tips provide a framework:

1. Create consensus (everyone on the same page).
2. Define an ongoing format for decision making (regular meetings with clear rhythm).
3. Build a family caregiving plan (who does what and when).
4. Plan to deal with conflict (don’t let disagreements become disrespectful).

Do you know what you need to do immediately after your loved one passes? Many caregivers don't. Are you worried about missing important tasks or feeling overwhelmed by the sheer volume of administrative, financial, and legal responsibilities?

We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've navigated the challenging process of handling death-related responsibilities firsthand. Between us, we've experienced the loss of multiple loved ones and learned valuable lessons about what needs to be done and when.

Connect with us and share your tips:

Website: https://thecaregiversjourney.org/

Donate: https://give.cornerstone.cc/thecaregiversjourney

Instagram: https://www.instagram.com/thecaregiversjourney/

Facebook: https://www.facebook.com/thecaregiversjourneys/

Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/

Email: [email protected], [email protected]

Full Show Notes

If you are following along with our 20 step Navigating Dementia Caregiving Roadmap guide this is part of Step 20. This is the first guide listed on our guides page.

There are many things that can be done ahead of time. We covered these in podcast episode 30 - End of life preplanning and blog as well as in the matching worksheet you can find on our website in the guides section called ‘End of Life Service Worksheet’. Click here to get to the Guides page, scroll down to find the sheet.

Tip 1: Prioritize these things immediately after death1.

Tip 2: Move to this list within the first few days and weeks

Tip 3: Over the next few weeks and months - manage their estate

Tip 4: Focus on the things to prioritize once the estate has been closed