In this solo Q&A episode, Dr. Linda Bluestein answers your biggest hypermobility questions, tackling topics like whether getting an official EDS (Ehlers-Danlos Syndromes) diagnosis is worth it, which pain medications actually help, how to improve posture, and the growing stigma around EDS. She also discusses visceroptosis (organ prolapse), posture braces, and the legalities of medical centers refusing EDS patients. Dr. Bluestein shares practical hypermobility hacks and gives insight into the challenges patients face when seeking care. If you’ve ever wondered how to advocate for yourself, manage pain, or improve daily function, this episode is packed with expert advice and actionable tips.

Takeaways:

Should You Get an EDS Diagnosis? – Listen as Dr. Bluestein describes how an official diagnosis can provide validation and access to specialists, yet may also lead to insurance and medical stigma issues.  

Pain Medications for EDS Are Off-Label – Dr. Bluestein explains which medications she has found most helpful for managing symptoms.

How Can Posture Be Improved – Dr. Bluestein shares which posture-support garments she prefers and how to use them in a way to avoid muscle weakening.

EDS Stigma is Getting Worse – Misinformation causes some doctors to dismiss EDS patients as exaggerating or attention-seeking. Learn how to advocate and educate your providers.

Some Medical Centers Refuse EDS Patients – While emergency rooms must treat everyone, clinics and specialists can decline to see EDS patients, making self-advocacy and persistence essential. Listen in to hear how you can avoid having this happen to you.  

Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.

Find the episode transcript here.

Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

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